Table 1.
Characteristic | N=13 |
---|---|
Persons with CF | 8 |
Age 12−17 years | 2 |
Age >18 years | 6 |
CFTR modulator use | 6 |
Advanced CF lung disease (FEV1 <40% predicted) | 3 |
Lung transplant recipient | 1 |
Caregivers of persons with CF | 5 |
Parent of child ages 0-11 years | 2 |
Parent of adolescent ages 12-17 years | 1 |
Parent of adult | 1 |
Partner/spouse | 1 |
Caregiver of patient with advanced lung disease | 1 |
Caregiver of patient using CFTR modulator therapy | 2 |
Participant sex | |
Male | 6 |
Female | 7 |
Participant Race/Ethnicity | |
Non-Hispanic White | 8 |
Non-Hispanic Black | 2 |
Hispanic | 2 |
Asian | 1 |