Table 1.
Demographic information.
| Characteristics (N = 37) | n | Mean | Range |
|---|---|---|---|
| Country of residence | — | — | |
| Australia | 9 | ||
| Canada | 11 | ||
| United Kingdom | 10 | ||
| United States | 7 | ||
| Gender | — | — | |
| Male | 14 | ||
| Female | 20 | ||
| Nonbinary | 3 | ||
| Age | — | — | |
| 18–29 years | 9 | ||
| 30–39 years | 8 | ||
| 40–49 years | 8 | ||
| 50–59 years | 7 | ||
| 60–69 years | 5 | ||
| Year of CD diagnosis | — | 2003 | 1978–2021 |
| Past surgery for CD | — | — | |
| Yes | 25 | ||
| No | 12 | ||
| CD activity | — | — | |
| In remission | 17 | ||
| In partial remission | 13 | ||
| Active/not controlled | 6 | ||
| Other (active and controlled) | 1 | ||
| Who helps you manage your IBD? | — | — | |
| Gastroenterologist who specializes in IBD | 28 | ||
| General Gastroenterologist | 6 | ||
| IBD nurse | 0 | ||
| Family doctor | 2 | ||
| Other (no one) | 1 | ||
| Racial or ethnic background | — | — | |
| African | 5 | ||
| Arab | 1 | ||
| European | 22 | ||
| Southeast Asian | 1 | ||
| Other (White, Caucasian, Jewish, Australian, no answer provided) | 8 | ||
| What types of monitoring have you experienced for your Crohn’s disease? (select all that apply) | — | — | |
| Bloodwork | 36 | ||
| CT scan | 28 | ||
| Endoscopy (colonoscopy, ileoscopy) | 36 | ||
| MRE (magnetic resonance enterography) | 22 | ||
| Intestinal ultrasounda | 24a | ||
| Fecal calprotectin | 32 | ||
| Do you feel that your Crohn’s disease is being monitored | — | — | |
| Too often | 0 | ||
| Just the right amount | 30 | ||
| Not often enough | 6 | ||
| No answer provided | 1 | ||
| Do you feel the work/time or effort involved in monitoring your Crohn’s disease is of benefit to you? | — | — | |
| Highly beneficial | 22 | ||
| Somewhat beneficial | 8 | ||
| Neutral | 4 | ||
| Not really beneficial | 1 | ||
| Not beneficial at all | 1 | ||
| No answer provided | 1 | ||
| What is your marital status? | — | — | |
| Life partner | 5 | ||
| Married | 15 | ||
| Single | 12 | ||
| Divorced | 1 | ||
| Other (common law) | 1 | ||
| Prefer not to say | 2 | ||
| What is your level of education? | — | — | |
| High school or equivalent | 3 | ||
| Trades or post-secondary | 1 | ||
| Some college or university | 9 | ||
| Bachelor degree | 14 | ||
| Graduate degree or higher | 10 | ||
| Which of the following best describes your employment status? | — | — | |
| Employed full-time | 20 | ||
| Employed on a casual basis | 4 | ||
| Unemployed | 1 | ||
| Not able to work | 6 | ||
| Retired | 4 | ||
| Full- or part-time parent | 1 | ||
| Other (full-time university student) | 1 |
Abbreviations: CD, Crohn’s disease; IBD, inflammatory bowel disease; MRE, magnetic resonance enterography.
aDemographic forms were completed in advance of the focus groups. Upon discussion with participants during the focus groups, it was noted that several participants had experienced an abdominal ultrasound, but not an intestinal ultrasound (IUS). The count for IUS is 11.