TABLE 4.
Item | Responses | Proportion agreement (%) |
---|---|---|
In a clinical practice setting, IBD-associated peripheral arthritis should be recognised by | An IBD specialist | 92 |
A rheumatologist | 93 | |
IBD-associated peripheral arthritis should be clinically diagnosed by | An IBD specialist | 85 |
A rheumatologist | 100 | |
In a clinical practice setting, IBD-associated peripheral should be defined as | Joint pain + swollen/tender joints on exam | 77 |
Morning stiffness + joint pain + swollen/tender joints on exam | 85 | |
Swollen/tender joints on the exam with the exclusion of other etiologies | 92 | |
In a clinical practice setting, IBD-associated peripheral can be monitored via | Visits to IBD specialist | 85 |
Visits to rheumatologist | 100 | |
The average patient with IBD-associated peripheral arthritis should be seen | At the time of scheduled assessment of IBD with mild disease and every 1–3 months for moderate to severe disease requiring active intervention | 85 |
Appropriate ways to assess for improvement or worsening in IBD-associated peripheral arthritis include | Patient report of change in morning stiffness | 75 |
Patient report of the change in joint pain with movement | 75 | |
Patient report of change in swelling/tenderness | 81–88a | |
Patient report of change in number of involved joints | 75 | |
Patient report of overall improvement/worsening | 75–81a | |
Physician report of change in swelling/tenderness/redness | 100 | |
Physician report of change in number of involved joints | 86–100a | |
Physician global assessmentb | 86–88a | |
Resolution of IBD-associated peripheral arthritis can be defined as | Patient report of resolution | 75 |
IBD specialist assessment demonstrating resolution | 86 | |
Rheumatology assessment demonstrating resolution | 100 | |
Recurrence of IBD-associated peripheral arthritis is defined as | Recurrent joint involvement in the same anatomic location(s) | 88 |
New joint involvement in any anatomic location | 100 | |
Timeline of recurrence of IBD-associated peripheral arthritis is defined as | Patient report of joint symptoms returning any time after resolution | 75 |
Physician assessment of joint symptoms returning any time after resolution | 88 | |
Patients with IBD-associated peripheral arthritis should be monitored for recurrence | As part of the standard of care visits with their IBD specialist | 94 |
As part of the standard of care visits with rheumatology | 100 |
Abbreviation: IBD, inflammatory bowel disease.
Range in percentage is due to the inclusion of percentage agreement for improvement and for worsening (see Table S2 for a breakdown of percentages by individual items).
Physician global assessment was defined by our panel with 100% consensus as the overall status of EIM based on patient symptoms, physical exam, and any relevant testing (imaging, laboratory data).