Table 3.
Phase II Summative Evaluation (EPIC 3 Pilot Study Participant Characteristics at Baseline) (N=10)
| Characteristics | Patients (n=5) |
Family Caregivers * (n=5) |
|---|---|---|
| Demographic Characteristics | ||
| Age (Years) | 60.2±10.6 Range: 49-72 | 59.0±8.9 Range: 51-73 |
| Race (African American) (%) | 2 (40) | 2 (40) |
| Gender (Male) (%) | 2 (40) | 1 (20) |
| Married (%) | 1 (20) | 3 (60) |
| Relationship to Patient | ||
| Spouse | n/a | 3 (60) |
| Significant Other | n/a | 1 (20) |
| Child | n/a | 1 (20) |
| Education (>High School Graduate) (%) | 4 (80) | 5 (100) |
| Health Insurance (%) | ||
| Medicare | 3 (60) | 2 (40) |
| Medicaid | 1 (20) | 1 (20) |
| Uninsured | 1 (20) | 0 |
| Current Smoking (%) | 4 (80) | 3 (60) |
| Regularly Attends Religious Services | 0 | 3 (60) |
| Ever Prayed for Own Health | 3 (60) | 4 (80) |
| Prior Palliative Care | 0 | 0 |
| Identified Surrogate Decision Maker | 0 | 1 (20) |
| Advanced Directive | 1 (20) | 1 (20) |
| Clinical Characteristics | ||
| Charlson Comorbidity Index* | 3.6±1.3 Range: 2-5 | n/a |
| FEV1 (%-Predicted) | 39.2±29.0 Range: 13-71 | n/a |
| GOLD Stage† | ||
| GOLD II-III (Moderate-Severe) (%) | 2 (40) | n/a |
| GOLD IV (Very Severe) (%) | 3 (60) | n/a |
| Supplemental Oxygen (%) | 4 (80) | n/a |
| Prior Cardiopulmonary Rehabilitation (%) | 3 (60) | n/a |
| Baseline Participant Reported Outcomes | ||
| COPD Symptom Burden (Chronic Respiratory Questionnaire) | ||
| Breathlessness | 3.4±1.7 Range: 1.8-6.0 | n/a |
| Fatigue | 3.2±1.7 Range: 1.8-5.8 | n/a |
| Emotional Function | 4.5±1.3 Range: 3.4-6.4 | n/a |
| Mastery | 4.8±1.9 Range: 2.3-7.0 | n/a |
| Patient Activation (Patient Assessment of Chronic Illness Care) | 57.4±26.0 | n/a |
| Quality of Life/Emotional Symptoms (PROMIS Measures) | ||
| PROMIS Global Health Physical Function | 35.3±3.4 Range: 29.6-37.4 | 43.1±6.3 Range:34.9-50.8 |
| Poor Quality of Life (%) | 5 (100) | 3 (60) |
| PROMIS Emotional Distress - Anxiety | 55.4±10.5 Range: 37.1-63.5 | 55.2±8.6 Range: 47.8-68.7 |
| Moderate-Severe Anxiety Symptoms (%) | 2 (40) | 1 (20) |
| PROMIS Emotional Distress - Depression | 55.2±6.6 Range: 47.5-59.4 | 58.0±6.1 Range: 49.8-64.4 |
| Moderate-Severe Depression Symptoms | 1 (20) | 3 (60) |
| Mobility/Social Isolation (Life-Space Mobility) | ||
| UAB Life Space Assessment | 63.8±29.9 Range: 27.0-92.0 | 78.8±31.1 Range: 38.0-110.0 |
| Restricted Life-Space Mobility (%) | 2 (40) | 2 (40) |
| Dyadic Typology | ||
| Individual Management | 3 (60) | 1 (20) |
| Patient Oriented | 3 (60) | 1 (20) |
| Caregiver Oriented | 0 | 0 |
| Joint Management | 2 (40) | 4 (80) |
| Collaboratively Oriented | 0 | 1 (20) |
| Complementarily Oriented | 2 (40) | 3 (60) |
| Dyadic Arrangement Satisfaction | ||
| Extremely Unsatisfied | 1 (20) | 0 |
| Somewhat Unsatisfied | 0 | 1 (20) |
| Undecided | 1 (20) | 1 (20) |
| Somewhat Satisfied | 0 | 1 (20) |
| Extremely Satisfied | 3 (60) | 2 (40) |
| Dyadic Adjustment Scale | 27±3.4 Range: 24-31 | 17.6±7.4 Range: 6-25 |
| Baseline Care Partner Burden | ||
| Family Caregiver Impact | n/a | 49.2±7.0 |
| Family Caregiver Objective Burden | n/a | 21.4 (3.8) |
| High Family Caregiver Objective Burden (%) | n/a | 2 (40) |
| Family Caregiver Subjective Demand | n/a | 15.5±2.6 |
| High Family Caregiver Subjective Demand (%) | n/a | 2 (40) |
| Family Caregiver Subjective Stress | n/a | 15.6±3.0 |
| High Family Caregiver Subjective Stress (%) | n/a | 3 (60) |
| Positive Aspects of Caregiving | ||
| Total | n/a | 31.6±7.5 |
| Self-Affirmation | n/a | 18.2±4.3 |
| Outlook | n/a | 11.2±1.9 |
*
Derived from 19 comorbidities; higher points associated with higher mortality.
†
Moderate = 50% ≤ FEV1 < 80%; Severe: 30% ≤ FEV1 < 50%; Very Severe: FEV1 < 30%
Abbreviations: GOLD = Global Initiative for Chronic Obstructive Lung Disease; FEV1 = Forced expiratory volume in 1 second