Table 2.
The Many Roles of Trust
| Theme | Representative quote | |
|---|---|---|
| Trust in: | Physician | I felt confident in the doctor and his capabilities. (P13) Even if it wasn’t [Dr. X leading the study], if there was somebody he trusted, that was good enough for me... I mean, I might have asked one more question. Like, “If this is your kid, would you recommend this person?” But, I don’t think he would have had somebody in there that he didn’t trust. (P3) |
| Research team | There’s a lot of people involved that know a lot more than I do, they can help make up those decisions and I just be presented with the option. And if I trust who’s talking to me about it then I can trust that they’re giving me the truth about risks, rewards, other options. (P3) Well, I figured if they were good enough to be working in that department they should be good enough to talk to me and ask me some questions and put me through some tasks. (P1) |
|
| Trust regarding: | Mitigation of risk | I don’t think there’s any risk or harm. I just, I just fully trust. (P7) |
| Scientific progress | Just because you miss the dart board when you throw a dart, doesn’t mean that you’re not going to hit the bulls eye eventually down the road because you got to take a stab at it. You’ve got to throw it once in a while. (P9) | |
| Patient-Participant’s comprehension of study goals | I don’t know the purpose of the study really, like what they’re expecting to find, or what they’re hoping to find, I don’t know how it will affect the surgery...but that’s okay. (P11) | |