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. Author manuscript; available in PMC: 2023 Jun 1.
Published in final edited form as: Palliat Support Care. 2022 Dec;20(6):794–800. doi: 10.1017/S1478951521001838

Table 2.

Family members’ perspectives on information dissemination and decision making process.

PRE N= 79 % POST N= 80 %

Ease of getting information
 Excellent 31 39.2 38 48.7
 Very good 25 31.6 19 24.4
 Good 14 17.7 17 21.8
 Fair 8 10.1 3 3.8
 Poor 1 1.3 1 1.3
 N/A 0 - 2 -
Understanding of information
 Excellent 33 41.8 37 47.4
 Very good 27 34.2 19 24.4
 Good 15 19 18 23.1
 Fair 4 5.1 3 3.8
 Poor 0 0 1 1.3
 N/A 0 - 2 -
Completeness of information
 Excellent 33 41.8 44 56.4
 Very good 24 30.4 14 17.9
 Good 15 19.0 14 17.9
 Fair 7 8.9 4 5.1
 Poor 0 0.0 2 2.6
 N/A 0 - 2 -
Consistency of information
 Excellent 30 38.5 35 46.1
 Very good 24 30.8 20 26.3
 Good 17 21.8 14 18.4
 Fair 6 7.7 6 7.9
 Poor 1 1.3 1 1.3
 N/A 1 - 4 -
Did you feel included in decision making process?
 Very included 32 40.5 55 68.8
 Somewhat included 28 35.4 12 15
 I felt neither included nor excluded 12 15.2 6 7.5
 Somewhat excluded 3 3.8 4 5
 Very excluded 4 5.1 3 3.8
Did you feel supported during the decision making process?
 I felt very supported 23 29.1 39 48.8
 I felt supported 35 44.3 27 33.8
 I felt neither overwhelmed nor supported 15 19 8 10
 I felt somewhat overwhelmed 4 5.1 5 6.3
 I felt totally overwhelmed 2 2.5 1 1.3
Did you feel you had control over the care of your family member?
 I felt I had good control 27 34.2 45 56.3
 I felt I had some control 28 35.4 20 25
 I felt neither in control nor out of control 16 20.3 9 11.3
 I felt somewhat out of control 5 6.3 4 5
 I felt really out of control 3 3.8 2 2.5
Did you have adequate time to have your concern addressed and questions answered?
 I had adequate time 72 91.1 66 82.5
 I could have used more time 7 8.9 14 17.5

ICU: Intensive Care Unit. N/A responses were excluded from the frequency calculations.