Table I.
Characteristics of reports and patients
| Variable | Description | Missing data |
|---|---|---|
| Country, n (%) | 0 | |
| North America | 37 (75.5) | |
| South America | 3 (4.0) | |
| Europe | 14 (18.7) | |
| Asia | 18 (24.0) | |
| Africa | 2 (2.7) | |
| Oceania | 1 (1.3) | |
| Year of publication, median (IQR) | 2013 (1996-2014) | 0 |
| Sex, n (%) | ||
| Female | 34 (45.3) | |
| Male | 41 (54.7) | 0 |
| Age at first signs, years, median (IQR), mean ± SD | 24.8 (15.8-37.9), 26.6 ± 18.0 | 36 |
| Age at diagnosis, years, median (IQR), mean ± SD | 17.0 (7.0-31.0), 21.2 ± 17.1 | 0 |
| Diagnostic delay, months, median (IQR) | 12 (4.9-36.0) | 36 |
| Patients <16 years old, n (%) | 33 (44.0) | |
| Post-treatment follow-up, months, median (IQR) | 14.0 (6.0-24.0) | 45 |
IQR: interquartile range; SD: standard deviation.