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. 2023 Mar 13;5(2):fcad064. doi: 10.1093/braincomms/fcad064

Table 1.

Participant demographic and clinical information

Age group Subject Sex Diagnosis BARS total SARA total MDS-UPDRS total PROM-Ataxia total EQ-5D-VAS (100–0)
30–40 1 F SCA3 0.75 0.8 1 73 67.5
2 M SCA3 5.75 5.5 6.5 64.5 82.5
3 F Control 0 0 0 23.5 100
4 F SCA3 19.75 19.9 41.5 107 83
5 F SCA3 14 15.8 38.5 123 77.5
6 F SCA3 0.25 1.3 3.5 54 73
41–50 7 F SCA3 15 18.1 41 117 35
8 M SCA3 5 6.5 19.5 69.5 60
9 M SCA3 17 17.5 28 152.5 78.5
10 M SCA3 21 25.8 50.5 167.5 67.5
11 F Control 0 0 2 16 82.5
12 M SCA3 5.75 5.8 11.5 19.5 77.5
13 F Control 0 0 0 9 97
14 F SCA1 11 13.4 36.2 131 50
15 F SCA3 4.25 4.8 9 53 92.5
16 F SCA2 9.5 11.8 26 128 77.5
51–60 17 F Control 0 0 0 12.5 94
18 M SCA2 17 16.8 29.5 138 89.5
19 F SCA3 13.75 16.3 22 118.5 44.5
20 M MSA-C 16.5 19.3 48 177.5 62
21 M Control 0 0 0 26 87.5
22 F SCA3 8.75 11.5 23.5 72.5 81
23 M SCA1 13.75 14.1 37 77.5 50
24 F MSA-C 18.5 18.7 31.7 181.5 57
25 M SCA3 10.5 9.8 15.5 31 87
26 M SCA3 10.75 9.8 18 21 94.5
27 F SCA6 5.5 5 12 49 90.5
28 F SCA3 9.25 13.5 21 56 93.5
29 M SCA3 1.5 1.5 7 44.5 88.5
61–72 30 M SCA3 11.75 11.5 16.5 152.5 27.5
31 M MSA-C 17.75 20.2 56.5 149.5 38
32 F Control 0 0 0 47.5 81
33 F SCA1 9.75 11 17.5 91.5 50
34 F Control 0 0 1 29 86.5
35 F MSA-C 7.25 8.3 14.5 112.5 40
36 F MSA-C 13 16 25.5 140 71.5
37 M Control 1.5 3.5 7 16.5 90
38 M MSA-C 14.5 16 28.5 90 85
39 M SCA3 16.75 16.3 40 145 88.5
40 M SCA6 2.5 1 6 67.5 96.5
41 M SCA6 5.5 3 4 56 90
42 F SCA3 14.75 17 24 142 79

Average SARA/BARS scores from the two virtual assessors are shown. Some total scores contain fractions of a point due to the linear scaling procedure applied for missing subscores (see ‘Materials and methods’ section). BARS, Brief Ataxia Rating Scale; EQ-5D-VAS, EuroQOL-5D-Visual Analogue Scale; PROM-Ataxia, Patient-Reported Outcome Measure of Ataxia; SARA, Scale for the assessment and rating of ataxia; UPDRS, Unified Parkinson’s Disease Rating Scale.