Table 2.
Pre-hospital indicators | |||
---|---|---|---|
Indicator | Domain of care | Note | |
1 |
What proportion of eligible patients are properly immobilized with A: cervical collar B: spine board |
Safety | |
2 | What proportion of patients are transferred to the first care facility within one hour of injury? | Timeliness | The first care facility is where the patient is stabilized. |
3 | What proportion of patients are transferred to the final care facility within eight hours of injury? | Timeliness | Final care facility is a referral center where definitive care (surgical or non-surgical) is provided. |
In-hospital indicators | |||
1 | What proportion of patients undergo decompression surgery within 24 h of injury? | Timeliness | |
2 | What is the inpatient mortality rate of patients? | Effectiveness | |
3 | How long is the patients’ length of stay based on the severity of spinal cord injury ASIA Impairment Scale (AIS) in the acute phase of care? | Efficiency | The length of stay of patients should be reported separately based on the severity of the injury in each patient (AIS A-D) |
4 | How long is patients’ length of stay in the ICU based on the severity of the spinal cord injury (AIS)? | Efficiency | The length of stay of patients should be reported separately based on the severity of the injury in each patient (AIS A-D) |
5 | What proportion of patients develop pressure ulcer during their first admission? | Safety, Effectiveness | The grade, size, and depth of pressure ulcers should be reported for individuals based on the severity of the injury (AIS A-D) |
6 | What proportion of AIS-A and AIS-B SCI patients develop pressure ulcers during first admission? | Safety, Effectiveness | The grade, size, and depth of pressure ulcers should be reported for individuals based on the severity of the injury (AIS A-D) |
7 | What proportion of patients develop a urinary tract infection (UTI) during their first admission? | Safety, Effectiveness | Both asymptomatic bacteriuria and symptomatic UTI should be reported separately. |
8 | What proportion of SCI-equipped centers in a catchment area have 24 h availability of operating room for early decompression (<24 h)? | Timeliness, Equity | 24/7 Availability of operating room include personnel, surgical instrument, spinal fixation instrument. Since spinal fixation instrument would be brought by private company, they aren’t available in all time in many centers, specifically small town. |
9 | What proportion of SCI-equipped centers in a specific area has 24 h availability of MRI? | Timeliness, Equity | |
10 | What proportion of SCI-equipped centers in a specific area has 24 h availability of CT scan? | Timeliness, Equity | |
11 | What is the readmission rate of patients due to SCI or complications in the first year following SCI? | Effectiveness |
SCI-related complications/problems include: Bladder management problems UTI Problems with defecation (Gastrointestinal regulation) Pressure ulcer management Respiratory tract infection |
12 | What proportion of patients received evidence-based anticoagulant [28] prophylaxis to prevent thromboembolic events? |
Safety, Effectiveness |
|
Post-hospital indicators | |||
1 | What is the Quality of life (QoL) of the main patient’s caregiver? | Patient-centered care | The main caregiver of the patient is a family member, friend, or a nurse who lives with the patient and is responsible for his / her care. |
2 | What is the rate of secondary complications of SCI within the 1st year after injury? | Safety, Effectiveness |
Chronic pain Bladder dysfunction UTI Bowel dysfunction Spasticity, Autonomy dysreflexia Pressure ulcer |
3 | What proportion of patients who need a wheelchair -individuals with paraplegia or tetraplegia- have access to a wheelchair within one year after injury? | Equity | |
4 | What proportion of patients have access to a modified car for driving within one year after injury? | Equity | |
5 | What is the employment rate of patients within one year after injury? | Equity | |
6 | How much does the patient’s functional independence improve within one year after injury? | Effectiveness | SCIM-III score change for patients from the first admission and in the follow-up session 1 year after the injury |
7 | What is the mortality rate of SCI patients within one year after injury? | Effectiveness | |
8 | What proportion of patients develop pressure ulcer in the first year following discharge? | Safety, Effectiveness | The grade, size, and depth of pressure ulcers should be reported for individuals based on the severity of the injury (AIS A-D) |
9 | What is the prevalence of moderate to severe (grade 3 and 4) pressure ulcers in patients in the first year following SCI? | Safety, Effectiveness | The grade, size, and depth of pressure ulcers should be reported for individuals based on the severity of the injury (AIS A-D) |
In and post-hospital indicators | |||
1 | What proportion of patients are satisfied with their pain control measures? | Patient-centered care | Patients would rate their satisfaction with pain control on a 0–10 verbal scale. |
2 | How do health-related indicators of patients’ QoL change from discharge to one year later? | Effectiveness |
The QoL of patients should be evaluated with a valid questionnaire at two time points: 1. On the day of discharge from the hospital 2. In a follow-up session one year after discharge |
3 |
What is the patient’s satisfaction with the QoC received A: during the first admission B: during the first year of injury |
Patient-centered care | Satisfaction is measured on a 0–10 VAS. 0 means no satisfaction and 10 means totally satisfied. |