Table 1.
Variable | ACE study participants (N = 191) M(SD) or N(%) | IMPACT advisory group participants (N = 4) M(SD) or N(%) | All participants (N = 23) M (SD) or N (%) |
---|---|---|---|
RCADS-25 score—worst (N = 18) | 27.61 (10.80) | n/a | n/a |
CGI-S-P—worst (N = 18) | 5.22 (1.00) | n/a | n/a |
CGI-S-P—current (N = 18) | 2.67 (1.03) | n/a | n/a |
Parent age | 45.05 (4.02) | 40.25 (10.69) | 44.22 (5.68) |
Parent gender | |||
Female | 17 (89.5%) | 4 (100%) | 21 (91.3%) |
Male | 2 (10.5%) | - | 2 (8.7%) |
Parent race | |||
Race not listed: “Hispanic” | 1 (5.3%) | - | 1 (4.3%) |
White | 15 (78.9%) | 4 (100%) | 19 (82.6%) |
Prefer not to say | 2 (10.5%) | - | 2 (8.7%) |
Missing | 1 (5.3%) | - | 1 (4.3%) |
Parent ethnicity | |||
Hispanic or Latine | 2 (10.5%) | - | 2 (8.7%) |
Not Hispanic or Latine | 14 (73.7%) | 4 (100%) | 18 (78.3%) |
Prefer not to say | 2 (10.5%) | - | 2 (8.7%) |
Missing | 1 (5.3%) | - | 1 (4.3%) |
Parent highest level of education | |||
High school | 1 (5.3%) | - | 1 (4.3%) |
College graduate (2-year) | 1 (5.3%) | - | 1 (4.3%) |
College graduate (4-year) | 7 (36.8%) | 1 (25%) | 8 (34.8%) |
Some college | 2 (10.5%) | - | 2 (8.7%) |
Master’s degree or equivalent | 7 (36.8%) | 1 (25%) | 8 (34.8%) |
Doctoral degree or equivalent | 1 (5.3%) | 2 (50%) | 3 (13.0%) |
Household income | |||
35,000–49,000 | 1 (5.3%) | 1 (25%) | 2 (8.7%) |
75,000–99,999 | 2 (10.5%) | - | 2 (8.7%) |
100,000–149,000 | 5 (26.3%) | - | 5 (21.7%) |
150,000–199,999 | 3 (15.8%) | 1 (25%) | 4 (17.4%) |
200,000 and over | 6 (31.6%) | 2 (50%) | 8 (34.8%) |
Prefer not to say | 2 (10.5%) | - | 2 (8.7%) |
Child age | 12.94 (3.65) | 13.33 (3.22) | 13.00 (3.52) |
Child gender | |||
Female | 4 (22.2%) | 2 (66.7%) | 6 (28.6%) |
Female and Non-binary | 1 (5.6%) | - | 1 (4.8%) |
Male | 13 (72.2%) | 1 (33.3%) | 14 (66.7%) |
Child race | |||
Race not listed: “Hispanic” | 1 (5.6%) | - | 1 (4.8%) |
White | 15 (83.3%) | 3 (100%) | 18 (85.7%) |
Prefer not to say | 2 (11.1%) | - | 2 (9.5%) |
Child ethnicity | |||
Hispanic or Latine | 2 (10.5%) | 1 (33.3%) | 3 (13.6%) |
Not Hispanic or Latine | 14 (73.7%) | 2 (66.7%) | 16 (72.7%) |
Prefer not to say | 1 (5.3%) | - | 1 (4.5%) |
Missing | 2 (10.5%) | - | 2 (9.1%) |
Child health insurance type | |||
Employer-sponsored insurance | 15 (78.9%) | 3 (100%) | 18 (81.8%) |
Health insurance purchased via federal Health Insurance Marketplace | 1 (5.3%) | - | 1 (4.5%) |
Both employer-sponsored and federal Health Insurance Marketplace | 2 (10.5%) | - | 2 (9.1%) |
Missing | 1 (5.3%) | - | 1 (4.5%) |
Although 22 families participated, one family had two parents who participated, and one IMPACT advisory group member was a young adult who was a former patient; thus, demographics are reported for 23 study participants and 21 children.