Table 1.
Measures | 3 months | 1 year | 2 years | |
Questionnaires | ||||
Sociodemographic data | Date of birth, gender, country of birth of participant, father, mother, race, living situation, marital status, highest level of education and working history | X | ||
Anthropometry | Height at baseline, weight 2 years before diagnosis, weight loss 3–6 months before diagnosis and average weight during adult life | X | ||
Current body weight and waist and hip circumference | X | X | X | |
Lifestyle | Current and past smoking behaviour, including dose and duration, alcohol consumption, (reasons for) changes in eating habits and mobility | X | X | X |
SQUASH (29) | X | X | X | |
Frequency and amount of alcohol consumption during week and weekend days (32–34) | X | X | X | |
Changes in eating habits and reasons for/type of changes | X | X | ||
Medical history | Previously diagnosed with cancer and family history of cancer | X | ||
Comorbidities, medication use and dietary supplement use | X | X | X | |
Diet | 163-item Food Frequency Questionnaire | X | X | X |
HRQoL | EORTC QLQ-C3044 | X | X | X |
Accelerometer | ||||
Habitual physical (in)activity and sedentary behaviour | X | X | X | |
Blood | ||||
EDTA whole blood for DNA isolation | X | |||
EDTA plasma and serum | X | X | X | |
Tissue | ||||
Formalin-fixed paraffin-embedded tissue of the primary tumour | X* | |||
CT scan | ||||
Diagnostic CT scan | X | |||
Follow-up CT scans | X† | X† | ||
Clinical data | ||||
Disease characteristics and treatment | X | X | X | |
Postoperative outcomes, recurrence and progression | X | X | X |
*To date only permission, no actual collection.
†Dependent on availability.
EORTC-QLQ-C30, European Organisation for Research and Treatment of Cancer quality of life questionnaire; HRQoL, health-related quality of life; ReLife, Renal cell cancer: Lifestyle, prognosis and quality of life; SQUASH, short questionnaire to assess health-enhancing physical activity.