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. 2023 Mar 27;13(3):e066909. doi: 10.1136/bmjopen-2022-066909

Table 1.

Overview of data collection in ReLife at the three time points after treatment

Measures 3 months 1 year 2 years
Questionnaires
Sociodemographic data Date of birth, gender, country of birth of participant, father, mother, race, living situation, marital status, highest level of education and working history X
Anthropometry Height at baseline, weight 2 years before diagnosis, weight loss 3–6 months before diagnosis and average weight during adult life X
Current body weight and waist and hip circumference X X X
Lifestyle Current and past smoking behaviour, including dose and duration, alcohol consumption, (reasons for) changes in eating habits and mobility X X X
SQUASH (29) X X X
Frequency and amount of alcohol consumption during week and weekend days (32–34) X X X
Changes in eating habits and reasons for/type of changes X X
Medical history Previously diagnosed with cancer and family history of cancer X
Comorbidities, medication use and dietary supplement use X X X
Diet 163-item Food Frequency Questionnaire X X X
 HRQoL EORTC QLQ-C3044 X X X
Accelerometer
Habitual physical (in)activity and sedentary behaviour X X X
Blood
EDTA whole blood for DNA isolation X
EDTA plasma and serum X X X
Tissue
Formalin-fixed paraffin-embedded tissue of the primary tumour X*
CT scan
Diagnostic CT scan X
Follow-up CT scans X† X†
Clinical data
Disease characteristics and treatment X X X
Postoperative outcomes, recurrence and progression X X X

*To date only permission, no actual collection.

†Dependent on availability.

EORTC-QLQ-C30, European Organisation for Research and Treatment of Cancer quality of life questionnaire; HRQoL, health-related quality of life; ReLife, Renal cell cancer: Lifestyle, prognosis and quality of life; SQUASH, short questionnaire to assess health-enhancing physical activity.