TABLE 1.
Themes and Quotes for Health History
Theme | Quote |
---|---|
History of allergy | “So, it took me about 4 doctor visits, 4 trips to the ER to get her diagnosed for asthma and to get her taken seriously by an asthma doctor. Her allergies are next level when it comes to being allergic to medicine, … (Parent 3, group 2, undetermined diagnosis time frame, before presentation) |
Reaction | “…, his PCN allergy is not as bad as anaphylaxis, but it’s pretty bad. He has this pretty bad reaction. And what worries me the most, though, I know diarrhea can be 1 of the side effects, but then his diarrhea is extreme.” (Parent 4, group 3, after diagnosis) |
Negative health care experience | “... And then we had a second experience where we went to an outpatient clinic and they actually prescribed him an adult dose and he had hives really bad, really fast. His pediatrician was really upset and said that amount could have killed him because they gave him probably 3 times what he should have had plus he had a response before.” (Parent 1, group 4, after diagnosis, before presentation) |
Child’s comorbidities | “I have got about 10 doctors for my 1 child who’s immune compromised, he has epilepsy as well, he’s very medically fragile. And doctors are not generally wanting to treat him if they don’t have to because he’s very, very complicated, he’s on about 14 different medications.” (Parent 2, group 2) |
Previous experience with testing | “Had Hannah not already had the scratch test, I would be more open to it, but she just had it last year. But if in a couple of years my pediatrician suggested doing it to see if she’s outgrown it, I would be open to it ….” (Parent 1, group 2, undetermined diagnosis time frame) |
“After” and “before” diagnosis refers to participants perceptions before the drug allergy reaction and subsequent diagnosis or after the reaction and diagnosis. Most of the discussion occurred following the group education on PCN allergies and the delabeling process.