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. 2023 Mar 15;13(4):300–308. doi: 10.1542/hpeds.2022-006737

TABLE 2.

Themes and Quotes for Delabeling Process

Theme Quote
Communication from provider “She (doctor) walked me through why we’d even have it done in the office, and versus why we wouldn’t do it at home … Her confidence and care gave me confidence in what we were going to do.” (Parent interview, after diagnosis, interview delabeled)
Prefers pediatrician “She has a steady pediatrician who is really good about keeping me up on what she needs to do because she has asthma as well. So, if she told me that she needed to go and have an allergy test… if my doctor recommended it, I would go and get her an allergy test.” (Parent 3, group 2, after diagnosis)
Prefers allergist “For me, it would have to be his allergist, because she takes everything so serious with him, it’s not even funny….So, she takes everything so serious with him. I can call her anytime. So, it would have to be her to remove it … And it’d be a relief, because that’s one more thing we can use, again.”(Parent 5, group 3, after diagnosis)
Who not to test “For me, that would probably, out of the list of people that we talked about before, it would probably be a pharmacist, just because they don’t have the same medical training. They also don’t have the interaction with our kids. I probably wouldn’t be comfortable testing that at a pharmacy or having that recommended from a pharmacy.” (Parent 1, group 1, undetermined diagnosis time frame)
Where to test “I would probably feel safer to do it in a hospital just in case something bad would happen. But, I would want to stay there longer than the hour, just for that simple fact that what if it is a delayed reaction like they talked about, and it takes all night long before you start seeing it.” (Parent 2, group 1, after diagnosis)
When not to test “No. Not when they’re sick. I don’t want to try anything on them when they are sick. … I just want them to be healthy as soon as possible because I don’t want to add more bad symptoms to what they’re having during that time.” (Parent 2, group 3, after diagnosis, after presentation)
Dose concerns “If they recommend doing the test, would just giving a baby dose and watching for 1 hour ... What if that’s not enough? Would that be enough to trigger any little tiny bit? Is that enough to make them allergic? So, let’s say we take the tiny, baby dose, and she’s okay. So, then the next time she’s sick, they put her on a regular PCN and we go home, and the reaction happens again.” (Parent 1, group 1, after diagnosis)
Length of test “Honestly, I would be open to it and even doing a longer test when he’s healthy and nothing else seems to be going on so I could actually check him for hives or whatever at home. … You could start out at the physician’s office or something for 2 hours or 3 hours, and then watch them over a certain amount of time.” (Parent 1, group 4, after diagnosis, after presentation)
Follow up concerns “How much follow up was done? Did we check in with those kids after a week? Are we talking about the kids who had just a little scratch test? People react 4 days later, some people react 8 days later, some people react third time they’re exposed to the medication and it kills them.” (Parent 2, group 2, after diagnosis)

“After” and “before” diagnosis refers to participants perceptions before the drug allergy reaction and subsequent diagnosis or after the reaction and diagnosis. Most of the discussion occurred following the group education on PCN allergies and the delabeling process.