Table 3:

Physical, Psychosocial, Neurocognitive and Quality of Life Outcomes after PICU Admission

Outcome or Parameter	Assessment in	By whom	When	How (example)
Physical outcomes
Clinical neurological evaluation	Child	Nurse Advanced Nurse Practitioner Physician	Hospital discharge and follow up and at least 6 months later	Neurological exam (Pediatric cerebral performance category (PCPC) score)
Health status, functional status	Child	Nurse Advanced Nurse Practitioner Physician	Hospital discharge and follow up and at least 6 months later	Physical exam (Functional status scale (FSS))
Readmissions	Child	Parent/Physician	As applicable
Motor development	Child	Physiotherapist	At least 6 months post discharge	Motor function testing (Bayley scales)
Perception/sensation	Child	Physician
Psychosocial outcomes
(Adaptive) Behaviour	Child	Self and/or parent	At least 6 months post discharge	Questionnaire Scale (Vineland adaptive behaviour scales (VABS))
Family burden	Parent	Parent	At least 6 months post discharge	Questionnaire (Peds QL Family impact module)
Emotions (regulation)	Child Parent	Self and parent Parent	At least 6 months post discharge	Questionnaire (Child behaviour checklist)
Coping	Child Parent	Self and parent Parent	At least 6 months post discharge	Questionnaire (Children’s coping strategies checklist)
Social functioning	Child	Self	At least 6 months post discharge	Questionnaire (PROMIS peer relationships form)
Post-traumatic stress	Child Parent	Psychologist Self and parent Parent	At least 6 months post discharge and from age 7 years	Questionnaire (PTSD Checklist for DSM-5)
Neurocognitive outcomes
General intelligence	Child	Psychologist	At least 6 months after discharge and age 2 years	Intelligence assessment (Bayley scales of infant development)
Attention	Child	Psychologist	At least 6 months after discharge and from age 6 years	Neuropsychological assessment (Developmental NEuroPSYchological Assessment (NEPSY))
Memory (visual/verbal)	Child	Psychologist	At least 6 months after discharge and from age 6 years	Neuropsychological assessment (Children’s memory scales)
Visuo-motor integration	Child	Psychologist	At least 6 months after discharge and from age 2 years	Neuropsychological assessment (Beery test of Visuo-motor integration)
Executive functioning	Child	Psychologist Parent	At least 6 months after discharge and from age 2 years	Neuropsychological assessment Questionnaire (Behaviour rating of executive function)
Language development	Child	Psychologist	At least 6 months after discharge and from age 2 years	Neuropsychological assessment (Bayley and NEPSY)
Quality of life
Physical functioning	Child and Parent	Self and parent	At least 6 months post discharge	Questionnaire (Pediatric quality of life inventory)
Emotional functioning	Child and Parent	Self and parent	At least 6 months post discharge	Questionnaire (Pediatric quality of life inventory)
Social functioning	Child and Parent	Self and parent	At least 6 months post discharge	Questionnaire (Pediatric quality of life inventory)