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. 2022 Sep 6;40(1):e14943. doi: 10.1111/dme.14943

TABLE 1.

Table of included studies

Author, Year Participant characteristics Study methods Study aim Themes
1 2 3 4 Limitations
Country

Balfe, 2007a; Balfe, 2007b; Balfe and Jackson, 2007; Balfe, 2009a, Balfe, 2009b

England

N = 17 T1DM

18–25 years

65% female

Individual interviews, and 2‐week diary, follow‐up interview after 4–6 months To explore the perceptions and practices of university students with diabetes, including alcohol, food consumption and exercise, technology use in T1DM management, body image and identity, self‐care, reasons for these practices and whether these changed over time. Data interpreted through theoretical lens of morality and discipline x x x x Limited quotes to represent themes

Bratke et al., 2020; Bratke and Sivertsen, 2021

Norway

N = 324 T1DM

18–35 years

64% female

5% immigrants

Cross‐sectional survey

National survey university students

To examine diabetes management and diabetes distress among university students with type 1 diabetes and compare mental and somatic health, quality of life, alcohol use and sleep disorders between students with/no diabetes x x Self‐reported data representativeness

Cockroft et al., 2019

USA

N = 1216 students 528 with diabetes

from 117 colleges

18–24 years

62% female

22% minority

Cross‐sectional survey

National college health survey data

To compare the health behaviours of college students with diabetes to college students without diabetes

x

Self‐selected sample

Self‐reported data

Type of diabetes unknown

Ersig, 2019

USA

N = 25 T1DM

18–24 years

84% female

16% minority

Cross‐sectional survey To explore the transition to adulthood for college students with T1D and their parents x x x Small, non‐representative sample

Fedor et al., 2017

USA

N = 13 T1DM

18–22 years

69% female

Individual interviews To describe the perceptions of first‐year college students with type 1 diabetes about the effect on diabetes management of transition from living at home to living independently at college x x x x

Limited quotes to represent themes, Transferability

Fredette et al., 2016

USA

N = 24, T1DM

18–24 years

88% female

4% minority

Individual interviews To (a) explore the overall QoL for emerging adults living with T1DM while attending college and (b) to identify experiences managing their condition at college that affect their quality of life x x x x

Transferability

Habenicht et al., 2021

Ireland

N = 14, T1DM

18–28 years

50% female

Individual interviews To explore the concept of social support in university students and to see how this may be influenced by disclosure x x x Nil noted

Hill et al., 2013

Canada

N = 9, T1DM

>18 years

67% female

Two focus group interviews To examine the lived experiences of university students with T1DM to better understand the challenges of living and coping with T1DM at this life stage x x x x

Small sample

Transferability

Kellett et al., 2018

England

N = 584, T1DM

18–24 years

64% female

Cross‐sectional survey To investigate the experiences of university students with T1DM and to describe the impact of transition to university on diabetes care and self‐care x x Self‐reported data

Miller‐Hagan and Janas, 2002

USA

N = 11 T1DM

N = 4 T2DM

18–40 years

73% female

12% minority

Individual interviews To describe how college students with diabetes perceive and manage alcohol consumption x x Transferability

Ramchandani et al., 2000

USA

N = 42, T1DM

M age 21 years

64% female

Cross‐sectional survey To examine the self‐reported impact of different factors on overall diabetes care of college students with type 1 diabetes x x x x

Small sample

Self‐reported data

Validity, reliability of survey

Ravert, 2009

USA

N = 450 Type NR

18–25 years

68% female

20% minoritiy

Cross‐sectional survey; data from national college health survey To examine the use of nine common alcohol management strategies among college undergraduates with diabetes to determine which strategies predicted reduced alcohol consumption and consequences x x Self‐reported data

Ravert et al., 2015

USA

238 posts from nine social networking sites Content analysis of online diabetes forums To examine the experiences encountered by students with diabetes transitioning into and through college x x x

Transferability

Participant characteristics unknown

Saylor et al., 2018

USA

N = 371, T1DM

18–30 years,

Sex NR

66% general, 34% affiliated CDN members

Cross‐sectional online survey To examine the characteristics and health outcomes of college students with T1DM as it relates to membership involvement in a local university‐based diabetes student organisation x

Validity, reliability of survey

Selection bias

Self‐reported data

Potential recall bias

Error in data table (corrected)

Saylor et al., 2019

USA

N = 12, T1DM <5 years

19–26 years

58% female

Focus group CDN member event To understand the experience of emerging adults with a relatively new T1DM diagnosis who are assimilating to college life x x x x Transferability

Thomas et al., 2021

USA

N = 61, T1DM

74% <25 years

54% female

10% minority

Cross‐sectional study To examine the relationship between perceived stress, coping and self‐care x

Self‐reported data

Small sample size

Representativeness

Wdowik et al., 1997

USA

N = 25 T1DM

18–35 years

68% female

Focus groups and individual phone interviews To identify factors that affect the ability and motivation of college students to engage in appropriate self‐care behaviours for successful management of diabetes x x x x Limited quotes to represent themes.

Wdowik et al., 2001

USA

N = 83, T1DM

M age 25 years

57% female

17% minority

Cross‐sectional study To develop the Diabetes College Scale (DCS) to identify predictors of diabetes self‐care x

Small sample

Self‐reported data

Missing data

Limited data reported

Representativeness

Wilson, 2010

England

N = 23, T1DM

17–19 years

52% female

Semi‐structured phone interviews To explore the experiences of young people managing their type 1 diabetes at college or university x x x

No ethics approval

Methods unclear

Wisk et al., 2021

USA

N = 122, T1DM

17–25 years

80% female

16% minority

Pilot trial of two versions of intervention To investigate the acceptability of a digital health intervention to reduce alcohol use risk among college students with T1D and preference for peer or medical narrator x x

Unvalidated questionnaires

No control group

Thematic text analysis not described

Note: Minority (populations): Non‐European/White. Theme 1: Barriers to self‐care at university; 2: Living with diabetes as a university student; 3: Identity, stigma and disclosure; 4: Strategies for managing diabetes at university.

Abbreviations: CDN, College Diabetes Network; NR: not reported; T1DM, type 1 diabetes; T2DM, type 2 diabetes.