Alliex, S., Irurita, V. F. |
2004 |
Australia |
13 patients (and 21 nurses) |
To identify the problem from the nurses' perspective in interacting with patients within a technological context and to discover how nurses dealt with this problem |
Grounded theory, interviews, participant observations |
Addressing the patient as an individual caring for human needs as being talked to and with, offering attention, making comfortable, maintaining presence at the bedside, giving attention, making genuine inquiries of personal requests. Reducing the impact of technology by understating it and using humour. Using touch to demonstrate empathy and compassion (soft‐hand) |
Basile, M. J., Rubin, E., Wilson, M. E., Polo, J., Jacome, S. N., Brown, S. M., Heras La Calle, G., Montori, V. M., Hajazadeh N. |
2021 |
USA |
28 patients, 12 relatives (and 31 health professionals) |
To understand how patients and family members experience dehumanizing or humanizing treatment when in the ICU |
Qualitative analysis, Remote focus groups and open‐ended surveys on social media boards |
Dehumanization occurred during “communication” exchanges when ICU team members talked “over” patients, made distressing remarks when patients were present, or failed to inform patients about ICU‐related care. “Outcomes” of dehumanization were associated with patient loss of trust in the medical team, loss of motivation to participate in ICU recovery, feeling of distress, guilt, depression, and anxiety. Humanizing behaviours were associated with improved recovery, well‐being, and trust |
Cheraghi, M. A., Esmaeili, M., Salsali, M. |
2017 |
Iran |
10 patients (16 nurses and 1 physician) |
To explain the process and means of providing Patient‐Centred Care |
Grounded theory, semi‐structured interviews |
Patient‐centred Care required an all‐embracing understanding of the patient and showing respect for their values, needs and preferences |
Connelly, C., Jarvie, L., Daniel, M., Monachello, E., Quasim, T., Dunn, L., McPeake, J. |
2019 |
UK |
196 Patients |
To understand what mattered to patients on a daily basis within the critical care environment and understand personal goals and what patients needed to improve their experience |
Framework Method, 592 statements from patients |
Four themes: Medical outcomes and information, The critical care environment, Personal care, Family and caregivers |
Corner, E. J., Murray, E. J., Brett, S. J. |
2019 |
UK |
15 patients |
To explore the patient experience of recovery from critical illness, with emphasis on their experience of rehabilitation, and to develop a theoretical model grounded in these data |
Grounded theory, semi‐structured interviews |
The central phenomenon grounded in these data was recalibration of the self. To communicate honestly and to maintain patient's hope, to be recognized as a person (‘humanized’ care), de‐humanized care included loss of agency |
Fabiane, U., Correa, A. K. |
2007 |
Brazil |
17 relatives |
To understand the experiences of ICU patients' relatives, to contribute to health care humanization in this context |
Phenomenology, interviews |
Relatives described it as a difficult, painful, speechless experience; experiencing and recognizing somebody's life: approaching the patient's suffering; break‐up of the family's daily routine; fear of having a family member die; ICU: a fearsome scene, but necessary; concern with family care |
Flinterud, S. I., Moi, A. L., Gjengedal, E., Ellingsen, S. |
2022 |
Norway |
10 patients |
To explore and describe what intensive care patients experience as limiting and strengthening throughout their illness trajectories to reveal their needs for support and follow‐up |
Phenomenology, interview study |
For patients, it was important to feel safe through a caring presence, being seen and met as a unique persona, and being supported to restore capacity |
Garrouste‐Orgeas, M., Périer, A., Mouricou, P., Grégoire, C., Bruel, C., Brochon, S., Philippart, F., Max, A., Misset, B. |
2014 |
France |
32 relatives |
To investigate the families' experience with reading and writing in patient ICU diaries kept by both the family and the staff |
Grounded theory, semi‐structured in‐depth interviews |
Family members felt the diaries humanized the medical staff and patient. The diary was a tool of humanization of the ICU. The diaries served as a powerful tool to deliver holistic patient‐ and family‐centred care despite the potentially dehumanizing ICU environment. The staff viewed the patient as a living human being |
|
2019 |
Canada |
5 patients, 13 relatives (and 35 health professionals) |
To assess the uptake, sustainability and influence of the Footprints Project |
Mixed‐methods design, 3 audits, semi‐structured interviews |
The Footprints Project facilitated holistic, patient‐centred care by setting the stage for patient and family experience, motivating the patient and humanizing the patient for clinicians. Footprints helped clinicians initiate more personal conversations, foster deeper connections and guide treatment |
Milani, P., Lanferdini, I. Z., Alves, V.B. (2018) |
2018 |
Brazil |
5 relatives |
To analyse the caregivers' perception of patients submitted to cardiac surgery when facing the care humanization in an ICU |
Content analysis, semi‐structured interviews |
Providing quality care to patients and caregivers, listening and appreciating their feelings, are essential to providing humanized care |
Pereira, M. M. M., Germano, R. M., & Câmara, A. G. |
2014 |
Brazil |
10 patients |
The study aims to understand the feelings of ICU patients |
Qualitative interviews with 10 patients |
Two major thematic groups emerged from their content: feelings of patients during shift change at the hospital beds, and relevant aspects of the ICU stay |
Rodriguez‐Almagro, J., Quero Palomino, M. A., Aznar Sepulveda, E., Fernandez‐Espartero Rodriguez‐Barbero, M. D. M., Ortiz Fernandez, F., Soto Barrera, V., Hernandez‐Martinez, A. |
2019 |
Spain |
9 patients, 9 relatives (and 9 nurses) |
To explore the perceptions about the experiences of patients in the ICU, their family members and nurses who attend them |
Descriptive phenomenological design, interviews |
Humanizing is talking, touching as the patient is a person. Patients and relatives consider technical attention as dehumanizing. Dehumanizing as long waiting hours for relatives, and separation that make the patient be alone |
Stayt, L. C., Seers, K., Tutton, E. |
2015 |
UK |
19 patients |
To investigate patients' experiences of technology in an adult intensive care unit |
Heideggerian phenomenology, Interview study |
Patients experienced technology and care as a series of paradoxical relationships: alienating yet reassuring, uncomfortable yet comforting, impersonal yet personal. By maintaining a close and supportive presence and providing personal comfort and care nurses may minimize the invasive and isolating potential of technology |
Tripahty, S., Acharya, S. P., Sahoo, A. K., Mitra, J. K., Goel, K., Ahmad, S. R., Hansdah, U. |
2020 |
India |
29 relatives |
To explore how families of ICU patients experienced ICU diaries |
Grounded theory, interview study |
Relatives experienced the diary as a communication enabler, a spiritual support that improved knowledge and helped them connect with the health care workers |
Urizzi, F., Carvalho, L. M., Zampa, H. B., Ferreira, G. L., Grion, C. M., Cardoso, L. T., (2008) |
2008 |
Brazil |
27 relatives |
Understand experience of family members during the patients stay in the ICU |
Interviews, phenomenology |
Thematic categories: difficult experience, painful, without words; put yourself in the place and perceive the other: approximation to the suffering of the patient; split in the relationship with family everyday life; fear of the family member death; concern with care of the family member |