Table 2:

Existing frameworks and clinical practice guidelines for high-quality pediatric palliative care

Framework or Guideline	Description
National Consensus Project Clinical Practice Guidelines for Quality Palliative Care	Guidelines for evidence-based processes and practices to improve access to quality palliative care for adults, children, and families living with serious illness in all care settings (29).
American Academy of Hospice and Palliative Medicine Commitments, Guidelines, and Recommendations	A statement regarding the core commitments of an integrated model of pediatric palliative and hospice care, as well as twelve guidelines and recommendations for high-quality care based on published observational studies, expert opinion, and consensus statements (16).
The Initiative for Pediatric Palliative Care Quality of Care	A document containing six quality domains for enhancing family-centered care of children living with life-threatening conditions, as well as nine goals and 41 indicators for determining progress toward each of these domains (31).
National Hospice and Palliative Care Organization’s Standards of Practice for Pediatric Palliative Care: Quality improvement resource	An addendum to the National Hospice and Palliative Care Organization (NHCPO)’s 2022 Standards of Practice for Hospice Programs. These standards serve as a resource guide for hospice and palliative care organizations serving infants, children, adolescents, and families, regardless of care setting. These standards additionally “define programmatic elements and standards which, if uniformly implemented, would ensure that programs for children with life-threatening conditions and their families provide the best care available” (15, 140).