Table 1.
Online (Facebook) Peer Support Groups Surveyed
| Facebook group | Focus | Approximate group size | No. of study participants |
|---|---|---|---|
| Beyond the Pink Moon | Breast (and ovarian) cancer | 6500 | 45 |
| BRCA Advanced Journal Club | Research relevant to hereditary cancer | 3000 | 38 |
| BRCA Commons | Data rights/issues in hereditary cancer | 1000 | 12 |
| BRCA Sisterhood | Living with a BRCA or other hereditary cancer gene mutation and associated cancers | 10,000 | 182 |
| My Breast Years Ahead | People living with cancer (primarily breast cancer) in Georgia area (Black-founded and run, largely Black membership) | 350 | 11 |
| Sisterhood of Ovarian Cancer Survivors | Living with ovarian cancer | 6500 | 21 |
Notes: There is considerable overlap in group membership among BRCA and cancer groups. People were asked to indicate all groups in which they saw the survey, hence the total is greater than the 291 people who participated.