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. Author manuscript; available in PMC: 2025 Jan 1.
Published in final edited form as: Clin Gerontol. 2022 Oct 21;47(1):50–65. doi: 10.1080/07317115.2022.2137449
Baseline Follow up
Person with dementia N M SD M SD P-Value
FAQ dependence (0–30) 17 24.9 5.1 25.9 5.4 0.386
NPI-Q Severity (0–36) 17 16.6 8.4 12.1 9.5 0.010
Caregiver 17
NPI-Q Distress (0–60) 17 21.0 14.2 12.2 12.8 0.001
Caregiver Strain Index (0–26) 17 13.8 5.5 11.1 6.5 0.011
ZBI Burden (0–24) 17 10.6 5.2 9.3 6.4 0.265
PCS Competence (0–4) 17 2.1 0.7 2.6 0.7 0.001
Positive aspects of caregiving (9–45) 17 33.2 8.3 34.9 7.8 0.310
Unmet needs (0–34) 17 15.4 9.1 8.9 7.3 0.001
EEDS dementia knowledge (0–14) 18 10.1 1.7 11.1 1.5 0.024
ISEL-12 appraisal support (4–16) 17 12.7 3.1 14.1 2.3 0.021
ISEL-12 belonging support (4–16) 17 12.2 3.4 12.6 2.9 0.624
ISEL-12 tangible support (4–16) 17 12.6 2.7 13.0 3.3 0.623
COPE 28 problem focused (8–32) 17 21.5 5.9 24.5 5.1 0.074
COPE 28 emotion focused (12–48) 17 31.1 5.2 32.9 6.2 0.180
COPE 28 avoidant focused (8–32) 17 13.3 3.3 12.4 3.2 0.200
CES-D-10 depression (0–30) 17 8.6 4.2 5.2 4.4 0.016
SPANE-Positive affect (6–30) 17 22.1 5.1 25.1 3.5 0.003
SPANE-Negative affect (6–30) 17 13.0 3.1 11.6 3.1 0.134
Perceived health (1–4) 17 2.4 0.9 2.4 0.7 0.999