TABLE 2.
Caregiver Stress and Coping Scores
| Caregiver Stress and Coping | n (%) or M ± SD |
|---|---|
| Total Stress Scorea | 2.46 ± 0.70 |
| Not being able to help child feel better | 3.39 ± 0.98 |
| Not knowing if SCD will get better | 3.06 ± 0.97 |
| “Other” | 3.00 ± 1.41 |
| Effects of treatment | 2.92 ± 1.15 |
| Paying bills and family expenses | 2.84 ± 1.17 |
| Concerns about job or partner’s job | 2.34 ± 1.27 |
| Talking to others about SCD | 2.21 ± 1.13 |
| Needing more help/support from family & friends | 2.16 ± 1.25 |
| Talking to child about SCD | 2.13 ± 1.08 |
| Understanding information about SCD | 2.05 ± 1.21 |
| Arguing with child about treatment | 2.02 ± 1.21 |
| Having less time/energy for others | 1.92 ± 1.08 |
| Proportion Coping Scores | |
| PCE Coping | 0.21 ± 0.05 |
| SCE Coping | 0.28 ± 0.05 |
| Disengagement Coping | 0.13 ± 0.03 |
| Raw Coping Scoresa | |
| PCE Coping | 2.75 ± 0.66 |
| SCE Coping | 2.78 ± 0.54 |
| Disengagement Coping | 1.75 ± 0.66 |
| Raw Coping Scores by Levelb | |
| PCE Coping | |
| “Not at all” | 2 (3) |
| “A little” | 23 (37) |
| “Some” | 27 (43) |
| “A lot” | 11 (17) |
| SCE Coping | |
| “Not at all” | 0 (0) |
| “A little” | 18 (29) |
| “Some” | 39 (62) |
| “A lot” | 6 (10) |
| Disengagement Coping | |
| “Not at all” | 30 (48) |
| “A little” | 24 (38) |
| “Some” | 7 (11) |
| “A lot” | 2 (3) |
Note. PCE = Primary Control Engagement; SCE = Secondary Control Engagement.
a
Range = 1-4 (1 = “not at all,” 2 = “a little,” 3 = “some,” and 4 = “a lot”).
b
To obtain raw coping scores by level, we rounded each individual’s average for that level to the nearest whole number (e.g., an individual’s average raw PCE score of 1.92 rounds to 2, or “a little”)