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. Author manuscript; available in PMC: 2024 May 1.
Published in final edited form as: J Pediatr Hematol Oncol. 2023 Feb 20;45(4):e433–e440. doi: 10.1097/MPH.0000000000002636

TABLE 4.

Short-Answer RSQ Responses: Caregiver Coping Strategies

Coping Style Specific Coping Strategy Sample Responses
PCE Prevention efforts “Ensuring she stays hydrated”
“In our home we tend to eat a lot more organic”
Managing youth’s pain/treatment “When my kids are having a crisis, I do everything in my power to keep them comfortable!”
“Making sure she takes medicine”
Problem Solving “Identify solutions that work and make plans that include solutions”
“Always beng [sic] flexible when it comes to changing our schedule and always being prepared when traveling”
Research “I may search the internet on different sickel [sic] cell treatments”
“Doing research on sickle cell, give [sic] current information”
SCE Distraction/relaxation/pleasurable activities “Make myself relax, swim, exercise to relieve stress”
“Listen to music, drive, read a book”
Religious/spiritual coping “Pray and trust God”
“Pray for the bad days to weigh out”
Cognitive coping “I try to handle my situations alway [sic] thinking the best no matter the difficulty”
“Remembering he has no control over his illness”

Note. PCE = Primary Control Engagement; SCE = Secondary Control Engagement