Fig. 3.

Amount of training and counselling session received by the participating patients (number and percent). Providing information by the specialists to the patients took on average 38.7 min (SD 23.2; median 37.5 min, range 5–130) for disease-specific information and 38.5 min (SD 29.5; median 30.0 min, range 5–230) for information on therapy. Genetic re-counselling averaged 18.1 min (SD 8.5; median 15 min; range 5–50) and psychological counselling took 98.7 min on average (SD 101.1; median 70 min, range 5–310)