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. 2023 Apr 26;16:1127–1139. doi: 10.2147/JMDH.S404017

Table 1.

Focus Areas of the Myositis-Clinic Team

Focus Area
Principles for referral
  • Diagnosis/clinical suspicion of inflammatory myopathy or overlap syndrome with dominant myositis component

Infrastructure and technology
  • Dedicated physical space where appointments occur in the 2 hospitals belonging to CHULN: Hospital de Santa Maria and Hospital Pulido Valente

  • Electronic medical records used (Reuma.pt/Myositis module) includes disease activity assessment tools and allow the standardised collection of data for research

  • Quick access when requesting blood tests for diagnostic (immunoblot for testing for myositis-specific and myositis-associated antibodies) and follow-up purposes

  • Ultrasound guided muscular biopsy

  • Neuropathology facilities for muscle biopsies

Appointments
  • Scheduled rheumatology appointments

  • Scheduled joint rheumatology-physiatry-dermatology appointments

Meetings
  • Weekly dedicated biologics decision clinic

  • Monthly discussion with pneumologists and radiologists dedicated to parenchymal lung diseases

  • Monthly discussion with a musculoskeletal radiologist

  • Digital conference discussions of clinical cases with international experts – Clinical Patient Management System (CPMS)

Organisation of human resources
  • The team is composed of two rheumatologists, one physiatrist and one dermatologist