The COVID-19 pandemic elicited feelings of uncertainty, fear and vulnerability among patients and health professionals. |
Institutional pandemic plans for the future should formally integrate lessons from social, emotional, and technological challenges evident during COVID. |
On top of disruptions to their care, cancer patients had to cope with disruptions to informal support networks and diminished cultural attention to cancer. |
Pandemic plans should include provision for increasing social support (e.g., access to social work professionals and/or means to facilitate informal care) and public communication strategies to acknowledge and counter the perception of a pull of attention away from patient circumstances. |
Telehealth was more suitable for some types of appointments than others, and was not always done well. |
Health systems should invest in technology and training to ensure telehealth provision is adequate to patient needs. Patients and care providers should discuss appropriateness of telehealth appointments on a case-by-case basis, with institutional guidelines for support. |
Face-to-face appointments that excluded the support person (for infection control purposes) often left patients feeling scared and/or confused. |
Care providers should facilitate remote participation of a support person where they are prevented from attending in person (e.g., set up a separate room with video connection). |
Many patients were afraid to visit hospitals (due to fear of infection). Safety measures (e.g., PPE) built trust in care providers but also introduced emotional distance and communication difficulties. |
Care providers should consider ways to overcome emotional distance (e.g., friendly signage, verbal reassurance) and communication difficulties (e.g., voice amplification, clear written materials). |
Support systems for patients, families, and caregivers need constant adaptation to provide equitable and balanced access to care during usual but also extraordinary circumstances. |
Preparedness for pandemics and other crises (e.g., natural disaster, terrorism…etc.) should be an integral part of health policy and strategy. |