Table 1.

Participant Characteristics

Participant	Age	Race/ Ethnicity	Care Recipient	Care Recipient Diagnosis	Care Recipient Age	Marital Status	Children	Employment/ School Status	Length of Time Caregiving	Current/ Former Caregiver
Kayla	32	White / Non-Hispanic	Spouse	Glaucoma, kidney problems, mood disorder	33	Married	Daughter, 3	FT graduate student	7 years	Current
Erika	32	Black	Aunt	Bipolar disorder, depression	50	Single	None	Employed FT	14 months	Current
Dana	24	White / Bosnian	Grandmother	Diabetes, heart & kidney problems	85	Engaged	None	Employed FT	2 years	Current
Gary	37	White / Non-Hispanic	Mother	Multi-infarct dementia, diabetes	73	Single	None	Not employed or in school	13 years	Current
Melanie	37	White/ Non-Hispanic	Mother	Early-onset Alzheimer’s, CHD, depression	66	Married	Son, 3	Stay at home mom	18 months	Current
Luna	18	Asian/ Filipino	Grandparents	Diabetes, stroke	71	Single	None	FT student	4 months	Current
Carla	32	White / Non-Hispanic	Mother	Rheumatoid arthritis & fibromyalgia	68	Separated	Son, 4	Employed FT; PT student	4 years	Current
Lacy	39	White / Non-Hispanic	Father	Lung cancer, emphysema	69	Married	Daughter, 7Daughter, 10	Employed FT	11 months	Current
Rachelle	20	White / Non-Hispanic	Grandmother	Rheumatoid arthritis	67	Single	None	FT undergraduate student	2 years	Former
Anne	35	White / Non-Hispanic	Mother	Early-onset Alzheimer’s	62	Partnered	None	Employed FT; PT graduate student	5 years	Current
Natasha	25	White / Non-Hispanic	Father	Lou Gehrig’s disease	62	Single	None	FT graduate student	15 years	Current
Tamara	22	Black	Mother	Lung Cancer	unknown	Single	2 sons	FT student	7 years	Former
			Uncle	TBI
			Aunt	Multiple Sclerosis
Peter	21	White / Non-Hispanic	Mother	Type I Diabetes, heart problems	62	Single	None	Employed 2 PT jobs	18 months	Former
			Father	Dementia, peripheral artery disease, kidney problems	78				7 years
Jasmine	31	White / Hispanic	Mother	Early-onset Alzheimer’s	74	Single	None	Employed 2 PT jobs	1 year	Current
Kay	27	White / Non-Hispanic	Great Grandmother	Dementia	99	Single	None	FT undergraduate student, employed PT	2.5 years	Former
Ravi	33	Asian/ East Indian	Father	Early-onset Alzheimer’s, Parkinson’s, epilepsy	61	Married	None	Employed PT	3 years	Current
Kendra	30	White / Non-Hispanic	Grandmother	Congenital heart defect, stroke, diabetes	74	Married	Daughter, 1Daughter, 3	Employed PT; PT graduate student	15 months	Current
Regina	26	White / Non-Hispanic	Husband	COPD, emphysema, narcolepsy, diabetes, cervical stenosis	47	Married	None	Employed FT, PT student	1 year	Current
Chithra	24	Asian/ East Indian	Grandmother	Alzheimer’s	79	Single	None	FT student; employed PT	7 years	Current
Tushar	36	Asian/ East Indian	Mother	Normal Pressure Hydrocephalus	63	Single	None	Employed FT	3 years	Current
Shane	28	White / Non-Hispanic	Grandmother	COPD, lung problems	83	Single	None	FT graduate student	4 years	Current
Ramona	28	White / Non-Hispanic	Husband	Hodgkin’s Lymphoma	28	Married	None	Employed FT	9 months	Former

Note: For current caregivers, their information (e.g., age) pertains to the situation at the time of the interview. For former caregivers, their information pertains to the time their caregiving began. For caregivers (e.g., Peter) who have cared for more than one family member, information on all caregiving experiences is reported.