Table 2.
Thematic framework illustrating parent support challenges and support needs/preferences
| Theme | Sub-theme | |
|---|---|---|
| Support challenges | Support needs/preferences | |
| Coping with the impact of OCD | Overwhelming nature of OCD | Headspace (respite) |
| Compassion & sensitivity | ||
| Sharing experiences | ||
| Getting help for my child | A battle to access OCD treatment | Being heard by professionals |
| Firming up the OCD pathway | ||
| Understanding parents’ role | Uncertainty & confusion about accommodation | Guidance on accommodation |
| Visibility of caring role | Treatment expectations | |
| Making sense of OCD | Confusing nature of OCD | Parent-focused information |
| OCD and other conditions | ||
| Joined-up care | Misunderstandings about OCD | A united approach |
| Lack of shared understanding in the family | ||
| Lack of coordination & unity across & within services | ||