Table 3.
Instrument | Study Design and authors | Measurement properties reported Study population, N Country |
Age mean (SD, range) | Gender % women Setting % NH | Results of measurement properties | Proportion of patients in need of palliative care |
---|---|---|---|---|---|---|
NECPAL | Development and prevalence study (Gomez-Batiste et al)44 |
Development and content validity Participants: doctors, nurses, social workers, and psychologists, experts in palliative care, N=18 Spain |
NR | NR |
Development & content validity Translation, cultural and clinical adaptation of relevant items of GSF PIG and SPICT were accomplished with three rounds of expert consultations. Appropriateness, comprehensiveness, and feasibility were assessed through interviews. |
N/A |
Face validity & comprehension Participants: doctors, nurses, social workers, and psychologists, experts in palliative care, N=18 Spain |
NR | NR |
Face validity & comprehension 18 interviews performed for comprehension and face validity in primary care settings with five versions of the tool |
N/A | ||
Prevalence & Feasibility Patients with advanced chronic conditions from nine different care services (3 primary care services, 4 nursing homes, 1 hospital, 1 social-health center), N=1,064 Spain |
81.7 years (SD 12) for the SQ+ patients | 61.5% of the SQ+ sample were women 22.1% of the SQ+ sample were NH residents |
Feasibility Assessed through two focus groups of eight multidisciplinary healthcare professionals |
Prevalence 70.5% of patients with chronic conditions were surprise question positive 64.3% of patients with chronic conditions were NECPAL+ indicating unmet palliative care needs. 91.2% of SQ+ patients with chronic conditions were NECPAL+ 7% of population >65 years of age were NECPAL+. |
||
Prevalence and correlational study (Esteban-Burgos et al)45 |
Hypothesis testing for construct validity Participants: Complex chronic patients with cancer, dementia, specific organ failure, N=149, (7 nursing homes) Spain |
84.5 years (SD 9) total sample | 67.1% women total sample 100% of the total sample were NH residents |
Hypothesis testing for construct validity Case Complexity Index (CaCI) Spearman correlation 0.133 (NS) with NECPAL+ |
N/A | |
Hypothesis testing for construct validity Participants: Complex chronic patients with cancer, dementia, specific organ failure, N=149, (7 nursing homes) Spain |
84.5 years (SD 9) total sample | 67.1% women total sample 100% of the total sample were NH residents |
Hypothesis testing for construct validity Frail-VIG Spearman correlation +0.405 (p<.01) with NECPAL+ |
N/A | ||
Hypothesis testing for construct validity Participants: Complex chronic patients with cancer, dementia, specific organ failure, N=149, (7 nursing homes) Spain |
84.5 years (SD 9) total sample | 67.1% women total sample 100% of the total sample were NH residents |
Hypothesis testing for construct validity IDCPal+ Spearman correlation +0.375 (p<.01) with NECPAL+ |
N/A | ||
Hypothesis testing for construct validity Participants: Complex chronic patients with cancer, dementia, specific organ failure, N=149, (7 nursing homes) Spain |
84.5 years (SD 9) total sample | 67.1% women total sample 100% of the total sample were NH residents |
Hypothesis testing for construct validity PPS Spearman correlation −0.374 (p<.01) with NECPAL+ |
N/A | ||
Hypothesis testing for construct validity Participants: Complex chronic patients with cancer, dementia, specific organ failure, N=149, (7 nursing homes) Spain |
84.5 years (SD 9) total sample | 67.1% women total sample 100% of the total sample were NH residents |
Hypothesis testing for construct validity PPI Spearman correlation +0.444 (p<.01) with NECPAL+ |
N/A | ||
Prevalence Participants: Complex chronic patients with cancer, dementia, specific organ failure, N=149, (7 nursing homes) Spain |
84.5 years (SD 9) total sample | 67.1% women total sample 100% of the total sample were NH residents |
Prevalence Assessed with positive surprise question |
Prevalence 53% of complex chronic residents were SQ+ Prevalence of NECPAL+ not reported |
SD, standard deviation; NR, not reported; SQ+, surprise question positive; NECPAL+, positive screen for palliative care needs; ICDPal+, positive screen for palliative care complexity