Table 1. Descriptive characteristics.
| Characteristics | n (%) | |
|---|---|---|
| Age in years, mean (SD) | 37.0 (9.9) | |
| Sex | Female, n (%) | 445 (82.3) |
| Male, n (%) | 92 (17.0) | |
| Age at disease onset, mean (SD) | 28.2 (9.4) | |
| Time since diagnosis | 0 to 3 years | 218 (40.3) |
| 4 to 9 years | 185 (34.2) | |
| ≥ 10 years | 131 (24.2) | |
| No answer | 7 (1.3) | |
| Self-Informed ethnicity | White | 364 (67.3) |
| Black | 26 (4.8) | |
| Multiracial | 144 (26.6) | |
| Yellow | 4 (0.7) | |
| Indigenous | 0 (0) | |
| No answer | 3 (0.6) | |
| Schooling | 0 to 8 years | 9 (1.7) |
| 9 to 11 years | 146 (27.0) | |
| > 12 years | 385 (71.2) | |
| No answer | 1 (0.2) | |
| Occupation | Employed | 229 (42.3) |
| Self-employed | 75 (13.9) | |
| Unemployed | 72 (13.3) | |
| Retired | 90 (16.6) | |
| Homemaker | 23 (4.6) | |
| Other (e.g., student, medical license) | 47 (8.7) | |
| No answer | 5 (0.9) | |
Abbreviation: SD, standard deviation.