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. 2023 May 11;9:32. doi: 10.1186/s40900-023-00442-5

Table 5.

Summary of research evidence and practice gaps

Review question Overarching gap Components
Research evidence gaps Conceptualize engagement Define PWLE, standardize terminology, standardize accessible reporting
Develop resources Best practice guidelines, concrete tools, process descriptions to increase clarity
Evaluate engagement Impact on research, impact on PWLE, impact on researchers, using various methodologies, conducted with PWLE and considering best practices
Increase diversity Generate research including representative populations, evaluate impact among diverse PWLE
Implementation gaps Broader institutional gaps Sufficient and flexible funding; support of institutions, funders, ethics boards; community collaborations
Day-to-day practice gaps Clear, early planning; building relationships/rapport; training and mentorship; increased diversity; PWLE at leadership levels

Note. PWLE people with lived experience