Table 5.
Review question | Overarching gap | Components |
---|---|---|
Research evidence gaps | Conceptualize engagement | Define PWLE, standardize terminology, standardize accessible reporting |
Develop resources | Best practice guidelines, concrete tools, process descriptions to increase clarity | |
Evaluate engagement | Impact on research, impact on PWLE, impact on researchers, using various methodologies, conducted with PWLE and considering best practices | |
Increase diversity | Generate research including representative populations, evaluate impact among diverse PWLE | |
Implementation gaps | Broader institutional gaps | Sufficient and flexible funding; support of institutions, funders, ethics boards; community collaborations |
Day-to-day practice gaps | Clear, early planning; building relationships/rapport; training and mentorship; increased diversity; PWLE at leadership levels |
Note. PWLE people with lived experience