Table 3.
Logistical challenges
| Patient (age at diagnosis) | Logistical difficulties related to study participation |
|---|---|
| 18 (7) | Caregivers unable to travel |
| 2 (10) | No |
| 17 (10) | Travel difficulties with medical equipment |
| 12 (14) | No |
| 19 (14) | No |
| 1 (14) | No |
| 3 (22) | No |
| 13 (24) | No |
| 16 (25) | No |
| 4 (27) | No |
| 10 (28) | No |
| 11a (29) | Travel difficulties |
| 6 (30) | No |
| 15 (30) | Caregiver requested transportation and lodging to be organized |
| 9 (30) | No |
| 14 (36) | Caregiver requested transportation and lodging to be organized |
| 7 (39) | No |
| 8 (46) | Caregiver requested more financial compensation |
| 5 (59) | No |
Sorted based on age of diagnosis, in ascending order
aPatient deceased