Box 1.

List of Patient-Reported Outcome Instruments Used to Evaluate Health-Related Quality of Life in Published Papers of AL Amyloidosis

Multi-Dimensional Health-Related Quality of Life Instruments
Generic
SF-36v2® Health Survey
PROMIS Global Health Scale
PROMIS-29 Profile
Condition-Specific (Cancer)
Functional Assessment of Cancer Therapy – General (FACT-G)
European Organisation for Research and Treatment Quality of Life Questionnaire – Core 30 (EORTC QLQ-C30)
Patient–Generated Subjective Global Assessment
Comprehensive Cancer Network Distress Thermometer
Condition-Specific (Heart Failure)
Kansas City Cardiomyopathy Questionnaire-12 (KCCQ-12)
Condition-Specific (Hematology)
Hematology Patient Reported Symptom Screen (HPRSS)
Single-Item Instruments
Patient Global Impression of Severity (PGI-S)
Patient Global Impression of Change (PGI-C)
Global Assessment of Functioning
Southwest Oncology Group (SWOG) Performance Status
Patient Experience/Concept-Specific Instruments
Mental Health
State-Trait Anxiety Inventory (STAI-Y)
Center for Epidemiological Studies Depression Scale (CES-D)
Coping Strategy Indicator (CSI)
General Health Questionnaire (GHQ-12)
Satisfaction with Life Scale (SWLS)
Symptom-Specific
Pain Numeric Rating Scale
PROMIS Fatigue
Epworth Sleepiness Score (ESS)
STOP-Bang questionnaire for obstructive sleep apnea (OSA)
Voice Handicap Index
Other
Work Productivity and Activity Impairment questionnaire (WPAI)
Study-specific survey items11,16,23