Table 2.

Participant demographics

Participant-group demographics
Children with life-limiting conditions (n = 26)
Age (years), mean (range)	12 (5–17)
Gender (F:M), n	17:9
Diagnosis, n
Congenital	3
Neurological	5
Gastrointestinal	10
Metabolic	1
Cancer	6
Respiratory	1
Interview duration (min), mean (range; SD)	37 (12–81; 19.1)
Parents/carers (n = 40)
Age (years), mean (range)	40 (21–65)
Gender (F:M), n	30:10
Relationship to child, n
Mother	30
Father	10
Diagnosis of child, n
Congenital	7
Neurological	10
Gastrointestinal	4
Metabolic	9
Cancer	6
Perinatal	1
Genitourinary	1
Infectious disease	2
Age of child with life-limiting condition (years), mean (range)	12 (0–17)
Interview duration (min), mean (range; SD)	63 (33–161; 28.3)
Siblings (n = 13)
Age (years), mean (range)	9 (5–15)
Gender (F:M), n	7:6
Diagnosis of child, n
Congenital	3
Neurological	7
Gastrointestinal	2
Metabolic	1
Age of child with life-limiting condition (years), mean (range)	10 (3–16)
Interview duration (min), mean (range; SD)	26 (8–37; 10.2)

F female, M male