Table 5.
Total costs of RDs from a societal perspective in different jurisdictions.
| Jurisdiction | Number of RDs included in the study | Total cost of RD per patient per year |
|
|---|---|---|---|
| Local currency | Hong Kong Dollars ($, adjusted to 2020 prices) | ||
| Bulgariaa | 8 | € 14,833 | 178,759 |
| Francea | 10 | € 27,521 | 331,676 |
| Germanya | 9 | € 60,213 | 725,661 |
| Hungarya | 8 | € 14,342 | 172,839 |
| Italya | 10 | € 39,494 | 475,963 |
| Spaina | 9 | € 37,187 | 448,165 |
| Swedena | 10 | € 39,164 | 471,988 |
| United Kingdoma | 9 | € 36,485 | 439,709 |
| United States15 | 379 | $62,141 | 487,778 |
| Hong Kong (this study) | 106 | – | 441,951b |
RD rare disease.
a
Estimated from the BURQOL-RD series (Supplementary information 6).
b
Based on cost estimates from sensitivity analysis.