TABLE 1.

Demographic information of the participants (n = 21).

Characteristic	Results
Gender of parent, n (%)
Female	17 (81%)
Male	4 (19%)
Gender of their child, n (%)
Female	16 (76%)
Male	5 (24%)
Age of their child in years and months
Mean (range)	14. 9 (11.4–18.0)
Child's initial pain location, n (%) a
Lower limb	8 (38%)
Multiple joints	7 (33%)
Chest, back	5 (24%)
Upper limb	1 (5%)
Duration of their child's pain in months a
Mean (range)	46 (5–120)
Treatment setting a
Only outpatient treatment	16 (76%)
Involved inpatient rehabilitation	5 (24%)
Diagnosis of their child a
Complex Regional Pain Syndrome (CRPS)	6 (29%)
Chronic Primary Pain	6 (29%)
Unknown/no diagnosis	5 (24%)
Hypermobility syndrome/Hypermobile Ehlers Danlos Syndrome	3 (14%)
Orthopedic diagnosis e.g., costochondritis	1 (4%)

^a Based on parent report.