TABLE 1.
Demographic and clinical characteristics of patients with acute myeloid leukemia, by informant Abbreviations: HCT, hematopoietic cell transplant; GED, Graduate Equivalency Degree.
| Caregiver (n = 235) | |||||
|---|---|---|---|---|---|
| Informant | Patient (n = 892)a | Of living patient | Of deceased patient | Total | p Valueb |
| N | 892 | 140 (60%) | 95 (40%) | 235 | |
| Median age in years (range) | 55 (19–87) | 48 (17‐82) | 59 (17–91) | 52 (17–91) | 0.87 |
| Female gender | 502 (60%) | 57 (41%) | 29 (31%) | 0 | <0.001 |
| Race/ethnicity | 0.38 | ||||
| White/Caucasian | 735 (88%) | 119 (85%) | 81 (85%) | 200 (85%) | |
| Black/African American | 31 (4%) | 6 (4%) | 2 (2%) | 8 (3%) | |
| Hispanic | 34 (4%) | 7 (5%) | 8 (8%) | 15 (6%) | |
| Asian | 20 (2%) | 3 (2%) | 1 (1%) | 4 (2%) | |
| Native American | 1 (0%) | 2 (1%) | 0 | 2 (1%) | |
| Pacific Islander | 2 (0%) | 0 | 1 (1%) | 1 (0%) | |
| Other | 8 (1%) | 3 (2%) | 2 (2%) | 5 (2%) | |
| Marital status | <0.001 | ||||
| Single, never married | 99 (12%) | 41 (29%) | 12 (13%) | 53 (23%) | |
| Married or domestic partnership | 595 (72%) | 88 (63%) | 76 (80%) | 164 (70%) | |
| Widowed | 21 (3%) | 3 (2%) | 4 (4%) | 7 (3%) | |
| Divorced | 116 (14%) | 8 (6%) | 3 (3%) | 11 (5%) | |
| Education | 0.90 | ||||
| Less than high school | 5 (1%) | 18 (13%) | 10 (11%) | 28 (12%) | |
| High school/GED | 66 (8%) | 29 (21%) | 19 (20%) | 48 (20%) | |
| Some college | 210 (25%) | 37 (26%) | 24 (25%) | 61 (26%) | |
| College or graduate/professional school | 549 (66%) | 56 (40%) | 42 (44%) | 98 (42%) | |
| Employment | <0.001 | ||||
| Employed for wages | 384 (46%) | 23 (16%) | 14 (15%) | 36 (15%) | |
| Retired | 181 (22%) | 16 (11%) | 30 (32%) | 46 (20%) | |
| On disability | 211 (25%) | 65 (46%) | 38 (40%) | 103 (44%) | |
| Unemployed | 38 (5%) | 7 (5%) | 4 (4%) | 11 (5%) | |
| Student | 15 (2%) | 29 (21%) | 9 (9%) | 38 (16%) | |
| Insurance | 0.024 | ||||
| Public insurance | 165 (20%) | 31 (22%) | 34 (36%) | 66 (29%) | |
| Private insurance | 654 (79%) | 101 (72%) | 59 (62%) | 164 (71%) | |
| Median years since diagnosis (range) | 8 (1–40) | 6 (1–31) | 6 (1–19) | 6 (1–31) | <0.001 |
| Disease status | <0.001 | ||||
| In remission | 849 (95%) | 138 (88%) | 12 (10%) | 150 (60%) | |
| Not in remission | 31 (3%) | 13 (8%) | 89 (74%) | 102 (40%) | |
| Treatment | |||||
| Allogeneic HCT | 568 (64%) | 89 (64%) | 62 (65%) | 151 (64%) | 0.43 |
| Autologous HCT | 45 (5%) | 6 (4%) | 1 (1%) | 7 (3%) | 0.074 |
| Palliative care | 38 (4%) | 9 (6%) | 43 (45%) | 52 (22%) | <0.001 |
a
892 patients started the survey, however, only 832 completed all choice tasks.
b
Comparing total patient sample to total caregiver sample.