Table 1. Characteristics of Participantsa.
| Characteristic | Survey 1 (n = 249) | Survey 2 (n = 989) |
|---|---|---|
| Type of participantb | ||
| Patient | 138 (55) | 511 (52) |
| Caregiver | 17 (7) | 8 (1) |
| Family member or friend | 99 (40) | 99 (10) |
| Teacher or coach | 50 (20) | 24 (2) |
| Other | 19 (8) | 12 (1) |
| Health care professional | 104 (42) | 327 (33) |
| Physician | 46 (18) | 94 (10) |
| Physiotherapist | 10 (4) | 89 (9) |
| Athletic therapist | 10 (4) | 32 (3) |
| Occupational therapist | 6 (2) | 21 (2) |
| Neuropsychologist | 5 (2) | 11 (1) |
| Nurse | 4 (2) | 11 (1) |
| Chiropractor | 3 (1) | 3 (0.3) |
| Social worker | 2 (1) | 2 (2) |
| Other | 18 (7) | 62 (6) |
| Did not answer | NA | 8 |
| Age, mean (SD), y | 45.1 (16.3) | 43.0 (4.2) |
| Sex | ||
| Female | 159 (64) | 764 (77) |
| Male | 85 (34) | 206 (21) |
| Other | 0 | 1 (0.1) |
| Prefer not to say | 5 (2) | 18 (2) |
| Race or ethnic or cultural background | ||
| Asian (East, Southeast, or South Asian) | 14 (6) | 53 (5) |
| Black (African or Afro-Caribbean) | 1 (0.4) | 11 (1) |
| Indigenous (First Nations, Métis, or Inuk/Inuit) | 2 (1) | 21 (2) |
| Latino (Latin American or Hispanic descent) | 1 (0.4) | 12 (1) |
| Middle Eastern | 5 (2) | 11 (1) |
| White (North American or European descent) | 218 (88) | 882 (89) |
| Otherc | 3 (1) | 7 (1) |
| Prefer not to say | 5 (2) | 21 (2) |
| Primary language spoken at home | ||
| English | 201 (81) | 817 (83) |
| French | 39 (16) | 23 (2) |
| Other | 3 (1) | 138 (14) |
| Prefer not to say | 6 (2) | 11 (1) |
| Province or territory of residence | ||
| British Columbia | 19 (8) | 79 (8) |
| Prairies (Alberta, Manitoba, or Saskatchewan) | 67 (27) | 202 (20) |
| Ontario | 99 (40) | 433 (44) |
| Quebec | 43 (17) | 144 (15) |
| Maritimes (Nova Scotia, New Brunswick, or Prince Edward Island) | 7 (3) | 56 (6) |
| Newfoundland and Labrador | 4 (2) | 5 (1) |
| Territories (Northwest Territories, Nunavut, or Yukon) | 0 | 0 |
| Not answered | 10 (4) | 70 (7) |
| What best describes where you live? | ||
| Urban | 187 (75) | 790 (80) |
| Rural | 57 (23) | 185 (19) |
| Not answered | 5 (2) | 14 (1) |
| How many concussions have you had?d | ||
| 1 | 35 (25) | 155 (30) |
| 2 | 27 (20) | 100 (20) |
| ≥3 | 59 (43) | 226 (44) |
| Do not know or unsure | 17 (40) | 30 (6) |
| At what age did you have your concussion(s)?d | ||
| 0-5 y | 13 (9) | 25 (5) |
| 6-10 y | 20 (14) | 59 (12) |
| 11-15 y | 30 (22) | 130 (25) |
| 16-20 y | 47 (34) | 152 (30) |
| 21-30 y | 63 (46) | 164 (32) |
| 31-50 y | 67 (49) | 233 (46) |
| 51-70 y | 21 (15) | 110 (22) |
| >70 y | 0 | 9 (2) |
| How long did your longest concussion symptoms last?d | ||
| < 1 wk | 21 (15) | 14 (3) |
| 1 wk to 1 mo | 19 (14) | 46 (9) |
| 2 to 3 mo | 13 (9) | 29 (6) |
| 4 to 12 mo | 16 (12) | 79 (15) |
| >1 y | 69 (50) | 339 (66) |
| Did not answer | 0 | 4 (1) |
| Are your symptoms still ongoing?d | ||
| Yes | 77 (56) | 414 (81) |
| No | 44 (32) | 84 (17) |
| Do not know or unsure | 16 (12) | 11 (2) |
| Did not answer | 0 | 2 (0.4) |
| How did you sustain your concussion(s)?d | ||
| Sports injury | 83 (43) | 225 (31) |
| Non–sports-related injury or fall | 58 (30) | 227 (31) |
| Motor vehicle collision | 33 (17) | 172 (24) |
| Physical abuse or assault | 10 (5) | 33 (5) |
| Other | 11 (6) | 66 (9) |
Abbreviation: NA, not applicable.
a
Questions were optional; responses may not sum to the total number of respondents. Unless otherwise indicated, data are expressed as No. (%) of participants.
b
In survey 1, respondents could select more than 1 response. For survey 2, respondents could select only 1 response, which assigned them to the lived experience or clinician (health care professional) group.
c
Indicates not described in the categories listed.
d
Includes patients with concussion only: 138 for survey 1; 511 for survey 2.