Table 2.
Interviewee quotes.
| Theme | Example quotes |
|---|---|
| Organizational commitment to inclusive recruitment related to providing community education | 1. “So it's educating first. That then is built on, once we have that established, then we build on discussing recruitment into trials for specific … trials.” (Female, Mixed Race, Principal Investigator) |
| 2. “… it's not a one hit wonder what we've started with … certain communities … it's integrated now in our regular outreach to the community. We have to catch up with the minority groups so our education in regards of clinical research is mainly focused on the minority groups and this shows for example even in our media activities so we created uh um programs in Spanish in our social media … for example and all of this is in Spanish simply to … communicate and engage with the minority.” (Female, non-Hispanic White, Research/Recruitment Lead) | |
| 3. “You recruit patients for a trial, this … particular demographic by first educating them. By offering them something valuable that they can use without the pressure … or … the need to even have to discuss a study … when you do this in in an effective manner, it means that you have to put up a lot of resources and quite honestly, many businesses are not willing to invest over the long term and this is where they go wrong … when you're dealing with a certain demographic you cannot be there for that trial for just that study, your investment has to go beyond that, beyond the study number one and then before the study even starts … so you can't look at numbers on a spreadsheet to determine … that piece of advertisement worked – it doesn't work that way.” (Male, Hispanic, Owner) | |
| Organizational commitment to inclusive recruitment related to organizational structure | 4. “… we do make an effort to have people um who … have comfort and knowledge uh of the communities we're trying to … recruit from … you want to have people in your organization who look like the people you're trying to recruit right and who sound like the people you're trying to recruit and who grew up in the neighborhoods …” (Male, non-Hispanic White, Research/Recruitment Lead) |
| 5. “… the full infrastructure that's needed it's not just recruitment I've gotta have … a doctor to do physical exams who um can speak Spanish … a Study Coordinator who uh can explain all of the procedures and … who speak Spanish if that's the only language … I've gotta have a full-time person who can … do that, multiple full-time people who can serve that whenever we need it. And that's … hard.” (Male, non-Hispanic White, Research/Recruitment Lead) | |
| 6. “… we made the investment of opening up our clinic on Saturday, which was a hard thing for us to do because you know from a business perspective it's an expensive thing to do Saturdays. You know additional staffing, physician time, you know you have limitations in terms of how … late you can see patients because of courier issues, I mean there's just a multitude of things and so it requires an up-front investment and a continued sustained approach …” (Male, Hispanic, Owner) | |
| Strong sense of mission related to improving healthcare through clinical research | 7. “… today's research studies are tomorrow's standard of care procedures.” (Female, non-Hispanic White, Research/Recruitment Lead) |
| 8. “… excellence in clinical research accelerating access to treatments that change lives …” (Female, non-Hispanic White, Research/Recruitment Lead) | |
| 9. "… the actual mission of trying to get clinical research to the community … over the last 15 years we've that's what we've been doing. We've been enrolling people from the community setting, I've been training up uh individuals who are often medical assistants uh to become coordinators and they go on to become certified coordinators and learn the industry. And we've been involving our community-based physicians in research …" (Female, non-Hispanic White, Owner and Principal Investigator) | |
| Instilling a culture of inclusion | 10. “… of course like all my staff they would love to um encourage … a minority um group to participate in a trial … we always like I said sit together to figure out … what's the best way to uh reach out to them.” (Male, Asian, Research/Recruitment Lead) |
| 11. “… this was the reason why the founder … of our site 12 years ago um even founded the clinical research part he's still an active endocrinologist and realized back then already that the healthcare system itself is not enough to help everybody because coverage is not always a given … this could be um a good benefit that clinical research has to offer …” (Female, non-Hispanic White, Research/Recruitment Lead) | |
| Inclusive recruitment practices evolving based on learning | 12. “… we're continually evolving and uh trying to get understanding of what would help more …” (Male, Black, Owner and Principal Investigator) |
| 13. “[We] do not advertise for specific trials because we have found that when we do that uh our population or the patients that are coming to us don't um buy the name of the trial … they show up and say “I'm not in the study, I'm not doing this, I'm not doing that” … that's why we … try to keep our recruitment efforts mainly from our doctors' database and doctor to doctor referral.” (Male, Hispanic, Research/Recruitment Lead) | |