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. 2023 Jun 15;5(8):100689. doi: 10.1016/j.xkme.2023.100689

Table 4.

Similarities and Differences in Themes Between Patients and Care Partners

Patient Care Partners
Cognitive Process
 COVID-19 as a health threat to existing kidney disease Patients perceived that COVID-19 was a health threat to people with existing kidney disease. Care partners perceived that COVID-19 was a health threat to people with existing kidney disease.
Emotional Process
 Negative emotional response to COVID-19 Patients showed heightened anxiety and increased vulnerability and were concerned about their own health. Care partners showed heightened anxiety and worry, but their negative emotions were related to concerns about the health of loved ones with kidney disease.
Interaction with Health care and Social Circles
 Continued reliance and trust in the health care team Patients felt like they could trust their health care team. Not Applicable
 Adequate health care Services For those who needed routine care, patients experienced smooth transitions because of telehealth and ancillary services. Some care partners felt that telehealth and laboratory services were sufficient to care for their loved ones.
 Fragmented care with health care services Patients who required multidisciplinary care and surgical procedures experienced fragmented care. Care partners were unable to fully participate in health care duties and experienced difficulty helping their loved ones get the care they needed, particularly when multidisciplinary care and surgical procedures were required. Additionally, visitation restrictions hindered caregiving activities, leading to a feeling of helplessness.
 Disrupted social support affected coping strategies and self-management Patients who typically relied on social networks to cope experienced social isolation and increased emotional distress. Not Applicable
Behavioral Process
 Increase cautionary activities to maximize survival Patients avoided going out and followed a strict cleaning protocol. Care partners increased the intensity of their caregiving role and displayed hypervigilance in family care to keep their loved ones safe and healthy.