Part 2: Measuring Change over Time

Intent: The intent of this section is to understand what parents have learned throughout the process and how their perspectives or emotions have changed over time. For example, we would be interested to know if parents are more empowered or have better coping skills at the end of the process. “Now that we’ve covered quite a bit about your experience with Family Navigation, I think it’s a good time to discuss changes that you may have seen over time.”

Q19: How do you think your experience would have been different if you had not worked with a Navigator?

• How, if at all, has your understanding of treatments and how to obtain services changed over time?

Q21: On a scale from 1 to 10 where 1 is not at all and 10 is very well, how well did the Family Navigator provide you with the knowledge and skills necessary to complete this process and get connected to services?

• Why did you choose this number?  • What type of assistance, if any, do you wish you could have had longer from the Family Navigator?  • What else could your Family Navigator have done for you?

Q22: Reflecting on your experience working with a Navigator, what has been the most valuable thing you’ve learned? Why?

• Knowing what you know about going through the process, what, if anything, do you wish you had learned?

Q23: Doctors are trying to make it easier for children with developmental concerns to get diagnosed and treated. If you could give doctors one suggestion to make things easier for families, what would you suggest?

• How would this help?  • How could this have helped you?