Table 4.

Some Patient Support Group websites.

Alport syndrome

Alport Syndrome Foundation (ASF): https://www.alportsyndrome.org/

Alport UK: http://www.alportuk.org/

Fabry disease

NFDF: https://www.fabrydisease.org/

Polycystic kidney disease (PKD)

PKDInternational: https://pkdinternational.org/membership

Nephrogenic diabetes insipidus (NDI)

HDIF: https://ndif.org/

von Hippel-Lindau disease (VHL)

VHLA: https://www.vhl.org/

Global genes

https://resource-hub.globalgenes.org/kb/article/298-gene-based-diagnosis-101/

Proteinuria: https://nephcure.org/connect/virtual-support-groups/

Tuberous sclerosis: https://www.tscalliance.org/