Table 2.

Distributions of concern and diagnosis information, n = 538

	Early diagnosis (< 3 years)	Later diagnosis (≥ 3 years)
	n = 106	n = 432
Age at first concern (months)
Mean (standard deviation)	18.1 (7.15)	34.8 (20.25)
Median	17.0	36.0
First quartile, third quartile	12.0, 24.0	24.0, 48.0
Range	(1.0–32.0)	(0.0–96.0)
Number of concerns
Mean (standard deviation)	5.8 (3.31)	4.8 (2.93)
Median	6.0	4.0
First quartile, third quartile	3.0, 8.0	3.0, 7.0
Range	(0.0, 13.0)	(0.0, 13.0)
Concern-to-diagnosis interval (months)
Mean (standard deviation)	7.9 (6.80)	28.3 (23.10)
Median	7	24
First quartile, third quartile	2.0, 12.0	12.0, 43.0
Range	(0.0–24.0)	(0.0–92.0)
Time since diagnosis (years)
Mean (standard deviation)	10.1 (2.52)	7.1 (3.12)
Median	9.7	7
First quartile, third quartile	8.0, 12.2	5.0, 9.0
Range	(6.1–16.0)	(0.4–15.0)