Table 1.
Interview results summary table.
| AmsterdamUMCdb | HiRID | Sanitas Data4Good | HM Hospitales | |
|---|---|---|---|---|
| Link | https://amsterdammedicaldatascience.nl/amsterdamumcdb/ | https://physionet.org/content/hirid/1.1.1/ | https://landing.sanitasweb.es/data/opendatacovid/english.html | https://www.hmhospitales.com/coronavirus/covid-data-save-lives/english-version |
| Country | Netherlands | Switzerland | Spain | Spain |
| Patient population | ICU and high dependency unit, all comers | ICU | Hospitalised COVID-19 patients | Hospitalised COVID-19 patients |
| Size | 23,106 admissions of 20,109 patients | 33,905 admissions 33,905 patients | 2,056 patients | 4,479 patients |
| Years | 2003 ~ 2016 | 2008 ~ 2016 | 2020 ~ 2021 | 2020 ~ 2021 |
| Data types | Vital signs, labs, medication | Vital signs, labs, medication, demographics | Vital signs, labs, medication, demographics | Vital signs, labs, medication, demographics, and images in DICOM format |
| Privacy method data sharing |
Anonymised GDPR not applicable |
Anonymised GDPR not applicable |
Pseudonymised GDPR applicable |
Anonymised GDPR not applicable |
| Consent | Not applicable | Yes | Not applicable | Not applicable |
| Re-use requirements | Research purposes, publish results, a collaboration with practising intensivist | Results of research using HiRID data must be published in the public domain | Research purposes | Research purposes, Publish results |
| Data access requirements | Training & signed license agreement | Training & signed license agreement | IRB & signed request form | IRB & signed request form |
| Standardisation and coding | SNOMED | SNOMED | ICD-10 | ICD-10 & ATC |
| Data sharing portal | DANS EASY repository | Physionet | Local site | Local site |
| Team composition disciplines |
1) Clinical care 2) Data engineering |
1) Data science 2) Clinical care 3) Three PhD students |
1) Data science 2) Legal & privacy 3) Clinical research 4) Communication 5) Public Affairs 6) Hospital and Insurance Business Units |
1) Legal 2) IT 3) Clinical research |
| Size of investment | 4 person-month | 8 person-month | 4 person-month | 4 person-month |
| External advisory | Privacy & Ethical | Government agency | Law firm | None |
This table contains a summary of the results from the questionnaires. Columns represent the four different databases, and the rows summarise the topics questioned. Size of the investment is indicated in terms of time (with persons required to work for a whole month as one).
ICU: Intensive Care Unit, GDPR: General Data Protection Regulation, IRB: Institutional Review Board, COVID-19: Coronavirus Disease 2019, DICOM: Digital Imaging and Communications in Medicine, SNOWMED: Systematised Nomenclature of Medicine Clinical Terms, IT: Information Technology, ICD-10: International Classification of Diseases 10th revision, ATC: Anatomical Therapeutic Chemical code, DANS: Data Archiving and Networked Services.