Table 1.

Family-to-family website.

Family-to-family website
Modules	Submodules
Considering treatment options	Trach and vent Other options
Your child's experience	Quality of life Life with the breathing machine
Life at home	New routines & challenges Balancing work, time & money
Relationships	Changes & challenges Extended family & other support
If your child's life is short	Focusing on what is most important Preparing for the end of life
Talking with the medical team	Getting clear about treatment options Expressing your preferences & concerns