Table 2.

Summary of structured team meeting guide.

Elements	Key discussion
Achieve consensus about child's prognosis	Short & long-term prognosis [not just respiratory]
Discuss child's likely experience of every treatment option	Tracheostomy, forms of non-invasive ventilation, end of life care, etc.
Hear summary of HomeVENT Family Interview	Family understanding, family values, home ventilation facilitators & barriers
Reconsider clinically viable treatment options, given family context & values	Items needing clarification/ resources prior to finalizing home ventilation decision