Table 3.
Family, child and physician characteristics.
| EL | Total⁎ | Usual care |
Intervention |
|---|---|---|---|
| Arm | Arm | ||
| Family | N = 30 | N = 15 | N = 15 |
| Mother | 29 | 14 | 15 |
| Father | 13 | 6 | 7 |
| Child | N = 30 | N = 15 | N = 15 |
| Age (mean, months) | 23.1 | 22.7 | 23.5 |
| Range | (3 mos – 17 years) | (4 mos – 16 years) | (3 mo – 17 years) |
| Race/ Ethnicity | 6 African American 7 White/ non-hispanic | 9 African American | |
| 2 Asian | 6 White/non-hispanic | ||
| Reason for hospitalization | Prematurity/Chronic Lung Disease (13) | Prematurity/Chronic Lung Disease (8) | Prematurity/Chronic Lung Disease (5) |
| Syndromic condition (9) | Syndromic condition (5) | Syndromic condition (4) | |
| Cardiac anomalies (4) | Cardiac anomalies (1) | Cardiac anomalies (3) | |
| Severe neurologic injury (2) | Other (1) | Severe neurologic injury (2) | |
| Other (2) | Other (1) | ||
| Ever been home | |||
| Yes | 11 | 6 | 5 |
| No | 19 | 9 | 10 |
| LOS at time of Discharge | |||
| <3 months | 6 | 3 | 3 |
| 3–6 months | 8 | 4 | 4 |
| >6 months | 16 | 8 | 8 |
| Tracheostomy | |||
| Yes | 25 | 14 | 10 |
| No | 5 | 1 | 5 |
| Disposition at 6 mo from enrollment | |||
| Home | 10 | 6 | 4 |
| Transfer | 5 | 3 | 2 |
| Still hospitalized | 3 | 0 | 3 |
| Died | 10 | 6 | 4 |
| Respiratory support at discharge/ death | |||
| Tracheostomy/ ventilator | 24 | 14 | 10 |
| Tracheostomy only | 2 | 0 | 2 |
| Non-invasive ventilation | 3 | 0 | 3 |
| None | 1 | 1 | 0 |
| Physician | N = 34 | N = 19 | N = 15 |
| Male | 15 | 9 | 6 |
| Female | 19 | 10 | 9 |
| Specialty | |||
| PICU/NICU | 20 | 10 | 10 |
| Pulmonology | 5 | 3 | 2 |
| ENT | 3 | 1 | 2 |
| Other⁎⁎ | 6 | 5 | 1 |
LOS – Length of Stay.
PICU – Pediatric Intensive Care Unit.
NICU – Neonatal Intensive Care Unit.
ENT – Ear, Nose, Throat (also known as Otolaryngology).
⁎
Both parents of a child were allowed to participate in the HomeVENT Family Interview (Intervention Group) and/or the Closing Interview (Usual Care and Intervention Groups). Any mother or father who participated in at least one interview is counted here.
⁎⁎
Complex Care, Palliative Care.