Table 3.
Overview of themes and key components.
Theme | Summary of key components | Condensed exemplar quotes |
---|---|---|
Kindred spirits: we just sort of work | Connection and closeness | “we were kind of glued together at that point”, |
Reciprocity | “we … seem to have built a closeness that we can both be happy with” | |
Learning about partner's pain | “I think the longer we've been going out, it feels a bit more of a shared experience and a shared kind of condition in a way” | |
Respecting limitations | “I think it [pain] makes us prioritize what we do want to do, even from just an energy standpoint”. | |
Loving in everyday acts: it's not above and beyond, it's concerned supportiveness | Living with pain is reciprocal work | “[pain creates] more work, and yet, we're really happy to do [the work]” |
Accommodating pain through everyday acts of loving | “[I’m not] going above or beyond [but] just doing what I feel any partner would or should do” | |
Concerned supportiveness | “it was just it was a really sweet action… and it was kind of a dark time…. definitely uplifting”. | |
Asking for help and asking to help | “[the] best way to find out what you can do to support your partner with pain is just to ask” | |
It's OK to be vulnerable with each other: we can talk it through | Being (repetitively) vulnerable | “romance comes [with] a lot of vulnerability and stuff” |
Being open and talking about pain | “[we’re] more confident to share things with each other, …nothing else seems as big as an issue [as pain]” | |
Disclosing pain | “how do I go about telling somebody I’ve got all these illnesses and how do I go about saying that the pain I’m in” | |
You can’t see over the horizon: hopes and fears for the future | Hope for the future as a couple | “[we’re] in a new kind of [exciting] phase of life |
Fears of being a burden | I wouldn’t want anything that you have to deal with to get worse… [although] we [would] be able to deal with as we go”. | |
Fears about employment | “making enough money to actually survive while also not wearing myself into the ground” | |
Fears about fertility | “if we have to go through IVF we will go through IVF…as a team” |