Table 1.

Publicly accessible databases for nephrology research.^a

Name	Type of dataset available	Link	Cohort summary
Chronic Renal Insufficiency Cohort (CRIC) [10]	Clinical, proteomics, transcriptomics	http://www.cristudy.org/Chronic-Kidney-Disease/Chronic-Renal-Insufficiency-Cohort-Study/	5499 patients with chronic kidney disease in the United States
Cure GlomeruloNephropathies (CureGN) [11]	Clinical, imaging	https://curegn-org.webflow.io/	2400 adults and children with minimal change disease (MCD), focal segmental glomerulosclerosis (FSGS), membranous nephropathy (MN) or immunoglobulin A nephropathy/vasculitis (IgAN/IgAV) from 70 centres from the US, Canada, Italy and Poland
European Rare Kidney Disease Network (ERK-Net) [12]	Clinical	https://www.erknet.org/	>70000 patients from 72 nephrology centres in 24 European countries
Human Heredity and Health in Africa (H3 Africa) [13]	Clinical, imaging, genomics	https://h3africa.org/index.php/h3africa-kidney-disease-research-network/	8000 patients with kidney disease and unaffected controls to determine whether certain genes are uniquely associated with kidney diseases in Africans
Human Kidney and Urine Proteome Project (HKUPP) [14]	Proteomics	http://www.hkupp.org/	International collaboration on human kidney and urine proteomics
Japanese Chronic Kidney Disease Database (J-CKD-DB) [15]	Clinical	http://j-ckd-db.jp/	>100000 patients from 21 university hospitals, with planned linkage to J-RBR in late 2020.
Japan Renal Biopsy Registry (J-RBR) [16]	Clinical, imaging	https://jsn.or.jp/en/greeting/	>40000 patients who underwent renal biopsy
Kidney Precision Medicine Project (KPMP) [17]	Clinical, transcriptomics	https://atlas.kpmp.org/	2835 total samples from patients with AKI, CKD and control.
National Registry of Rare Kidney Diseases (RaDaR) [18]	Clinical	https://ukkidney.org/audit-research/data-permissions/data/radar-database	26913 patients from 104 sites in the UK
Nephroseq [19]	Clinical, transcriptomics	https://www.nephroseq.org/resource/login.html	26 datasets with 1989 samples with analytic and visualization tools available on the platform
NEPhrotic syndrome sTUdy NEtwork (NEPTUNE) [20]	Clinical, imaging, genomics	https://www.neptune-study.org/	450 adults and children with minimal change disease, focal segmental glomerulosclerosis, and membranous nephropathy
Renal Gene Expression Database [21]	Transcriptomics	http://rged.wall-eva.net/	5253 tissue samples and 101 cell lines from NCBI Gene Expression Omnibus

^aApprovals may be necessary for access to some databases.