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. 2023 Jul 1;19(7):1375–1378. doi: 10.5664/jcsm.10576

Table 1.

Evolution of the total and item-per-item score at the NSS.

Nov. 2016, Age 21 Feb. 2021, Age 26 Aug. 2021, Age 26
NSS Total Score 17 25 36
Irresistible need to sleep during the day (Item 1) Per month (3) Per week (4) Per day (5)
Worried about falling asleep during the day (Item 2) Not worried at all (0) Worried (2) Not very Worried (1)
Disruption of work/activities caused by daytime sleep attacks (Item 3) Not important at all (0) Moderately important (1) Moderately important (1)
Disruption of social and family life by daytime sleep attacks (Item 4) Not important at all (0) Moderately important (1) Moderately important (1)
Feeling after one of such daytime sleep attacks (Item 5) Tired (1) Tired (1) Tired (1)
Time passed before the next episode of daytime sleep attack (Item 6) No irresistible sleep attack (0) No irresistible sleep attack (0) Less than 1 hour (4)
Impact of daytime sleep episodes on the ability to drive a car (Item 7) Not at all (0) Not too much (1) Not too much (1)
Frequency of generalized cataplexy episodes (Item 8) Per month (3) Per month (3) Per day (5)
Frequency of partial cataplexy episodes (Item 9) Per month (3) Per week (4) Per day (5)
Impact of cataplexy episodes on work, social or family life (Item 10) Much (2) Much (2) Very much (3)
Frequency of hallucinations when falling asleep/waking up (Item 11) Per month (3) Not at all (0) Per year (2)
Hallucination bothering (Item 12) Not very bothered (1) Not bothered at all (0) Not bothered at all (0)
Frequency of sleep paralysis when falling asleep/waking up (Item 13) Not at all (0) Per week (4) Per week (4)
Sleep paralysis bothering (Item 14) Not bothered at all (0) Not bothered at all (0) Not very bothered (1)
Nighttime sleep disturbance (Item 15) Not too much (1) Much (2) Much (2)

NSS = Narcolepsy Severity Scale.