Table 1.
Listing of socio-demographic and clinical data of n = 291 SLE patients [BC Broad Consent, Q1 first quartile, Q3 third quartile, SLEDAI Systemic Lupus Erythematosus Disease Activity Index, HAQ Health Assessment Questionnaire (Score calculated from the Funktionsfragebogen Hannover (FFbH))].
| All | Consented to all BC items | Lack of consent on individual BC items | |
|---|---|---|---|
| N | 291 | 286 | 5 |
| Age, median [Q1, Q3] | 44.0 [33.8, 53.0] | 44.0 [33.0, 53.0] | 40.5 [39.3, 48.5] |
| Sex = female, n (%) | 251 (86.3) | 246 (86.0) | 5 (100.0) |
| Education, n (%) | |||
| University entrance diploma | 136 (47.4) | 132 (46.8) | 4 (80.0) |
| Another school diploma | 143 (49.1) | 143 (49.6) | 0 (0.0) |
| No school diploma | 8 (2.8) | 7 (2.5) | 1 (20.0) |
| Disease duration in years, median [Q1, Q3] | 15.0 [8.0, 21.0] | 15.0 [8.0, 21.0] | 16.0 [7.0, 22.8] |
| Duration of care in our center in years, median [Q1, Q3] | 10.5 [5.4, 15.5] | 10.5 [5.3, 15.4] | 15.1 [11.8, 15.7] |
| Co-consent to other studies performed at our center, n (%) | 249 (85.6) | 245 (85.7) | 4 (80) |
| Ever Co-consent to other studies performed at our center, n (%) | 278 (93.8) | 273 (95.5) | 5 (100) |
| SLEDAI score, median [Q1, Q3] | 2.0 [0.0, 5.0] | 2.0 [0.0, 5.0] | 4.0 [3.0, 6.0] |
| FFbH score, median [Q1, Q3] | 94.4 [77.8, 100.0] | 94.4 [77.8, 100.0] | 91.7 [43.1, 98.6] |
| HAQ score, median [Q1, Q3] | 0.52 [0.36, 0.98] | 0.52 [0.36, 0.98] | 0.44 [0.36, 0.63] |