Table 1.

Patient Characteristics

Total Patients 62
	Male n = 41 (66%)	Female n = 21 (34%)
Median age at diagnosis years (range)	8 (1–29)	8 (2–20)
Age at last clinic visit	19 ± 8.5 (range 9–40)	16 ± 6.8 (range 7–28)
<18 y	21 (51%)	11 (52%)
>18 y	20 (49%)	10 (48%)
Radiation treatment protocol
High risk	19	10
Standard risk	13	9
Dose not available	7	1
No irradiation	2	1
Outcome
Survivors
<5 y from diagnosis	n = 5 (10%)	n = 6 (21%)
>5 y from diagnosis	n = 16 (40%)	n = 5 (26%)
>10 y from diagnosis	n = 14 (35%)	n = 9 (47%)
Deceased	n = 6 (15%)	n = 1 (5%)
Endocrine abnormalities
GH deficiency	29 (70.7%)	11 (52%)
Hypothyroidism	22 (52%)	10 (48%)
ACTH deficiency	3 (7.3%)	1 (4.8%)
Weight status
Normal	24 (59%)	14 (67%)
Underweight	6 (15%)	1 (5%)
Overweight	4 (10%)	3 (14%)
Obese	7 (17%)	3 (14%)